I have joined the ms club

New diagnosis and before diagnosis
1

Hi all

I have finally had access to my ms letter.
Accessed via online system.
They found bands in my csf.

So they are saying i have (benign multiple sclerosis cis with positive csf ocb bands)

Not sure how they can say benign MS?

But there has also been a strange finding of p ANCA in my blood so they are referring me to rheumatology for an expert view.

1 Like
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Neither can I. Perhaps they have a crystal ball? But never mind that; you have some news. and some progress, and some clarity and something to build on in the New Year.

3

feeling shocked of course. Next appointment with consultant is ms. Although I can see the letter has been sent to ms nurse team too.