I feel alone and scared.

New diagnosis and before diagnosis
1

Good eve all
My name is Maddie and its lovely to meet you all. I am 32 years old and last May i had a scary couple of weeks, my vision went i could not walk unaided, i was feeling faint etc. That slowly subsided and i regained my strength. After that i have had terrible and painful symptoms such as nearly wetting myself for needing the toilet upto 4 times per night, my back and ribs keep going numb, my leg and foot is stiff and i struggle to walk some days. The list goes on and on. Its not getting any better and i am scared. I have been back and forth to my GP and i was referred for a neuro on the 15th of September last year. My stiffness is worse on a night and sometimes i can barely move my whole body. They say i could be waiting until August and i cannot cope. I am scared i have Progressive ms as my symptoms all tick that box. My gp thinks i have Ms although he did say he cannot really say it 100%. My mobility is slowly going and my mental health is suffering. I am sorry for ranting i was just hoping i could meet others for advice and just to know i am not alone! The wait is killing me and i feel so bitter sometimes that. Thanks in advance.
Maddie :blush:

2 Likes
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hello Maddie.
I know just how you feel sweetheart.

I began with typical PPMS symptoms when I was 45…I’m 70 now.

It took 22 years to get a diagnosis, as my only 2 MS lesions were hiding in my spine.

I have 2 carers and a wonderful hubby who all look after me.

If you do have MS, get all the help you can and you’ll find your way through like I did.

love Boudsx

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Hi Maddie, just to let you know you’re not alone. Everyone in this group are all here on the same journey. I have read it right that you are not going to be seen till August, that is a long way off!! If it was me I’d be back at the doctors asking for a scan as that will give them and you an idea of what is wrong. Don’t be scared, if it is ms there are treatments and help for you. Take care, Angie

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Hi Maddie,
sorry you are feeling so rough and scared.
Only a neurologist can give you an MS diagnosis. It might be worth trying to seek a quicker private appointment if you can.
All the best
Mick