Just wondered, may I ask if you know, what the criteria are for getting the diagnosis of PPMS?
Reason I ask is that I fervently believe I too have PPMS but am getting nowhere with Neuros and doctors (usual story).
I have had problems on and off since I was 15 with loss of feeling in legs, pins and needles, feeling very weak, mind-numbing fatigue and then five years ago all those things happening all at once, together with loss of bowel control, bladder problems, vaginal numbness, clumsiness, double vision, burning pains and perception problems and dizziness.
Most recent episode started on Christmas Day whereby I collapsed with usual symptoms plus new one of pain in back of right eye. Am off to Opthalmic Consultant in about an hour actually.
Just wondered though how you actually get to a diagnosis of PPMS as someone on this site recently said that most people with PPMS may never get a diagnosis, which really perturbs me.
I have asked my Neuro for an MRI but was told no as he didn’t want to expose me to radiation.
I am currently trying to get another appointment with him to say that I will pay for MRI myself if he will just refer me (I have a printed application form for an MRI at Nuada in London ready to take with me for his signature and referral but am expecting yet another battle).
Any thoughts/help with the diagnosis protocol would be much appreciated.