There is some terrible diagnostic practice going on all over the place it seems. From diagnosis via email, to just having it casually dropped into conversation, and on to having appointments made for MRIs with no forewarning.
So many of you in limbo, or half in and half out! If you get bad treatment, or just dreadful communication. As trying2beserene said, contact PALS (Patient Advice and Liaison Service). It won’t make your experience any better in the short term, but it may make the neurology department of your hospital aware that this is not the way to communicate with vulnerable patients who are getting very bad information in ways that are unhelpful at best and deeply concerning at worst.
It does sound that 1970, Jab25 and the anon poster, have all been badly diagnosed with MS and then left dangling in limbo. You all deserve better than this. You all should have proper appointments with a neurologist who tells you for definite that you have MS. Also whether it appears you have relapsing remitting MS (most likely) or a progressive variety. You should be given the contact details of an MS nurse who can help you through the minefield that is MS.
As 1970 has done, if you are floating in limbo, phone your neurologists secretary and ask for a face to face appointment. It’s the least you deserve.