So a few weeks ago I woke up with numb/tingly legs. Partner dragged me to a&e where they decided to keep me in, after many discussions with many different doctors (telling all of them my history of optic neuritis and that I see the neurologist every 6 months or so) they sent me for an mri and let me go home the next morning. When they discharged me they told me that it did seem like MS, someone would phone me with my MRI results and then a neurologist would be in touch if there was any evidence.
About a week later I had horrible back pain so back to A&E I was dragged. The woman I saw there checked for my MRI results, told me there were 3 new lesions so she would email the neurologist, took my phone number told me the neurologist would be in touch.
A couple of days after that someone from Ambulatory phoned me to explain my results, said that my case has been passed to neurology, the neurologist would be in touch after his weekly meeting with radiology.
Two weeks later still not heard anything so I phoned the MS nurse, explained everything she said she would chase it up. She phoned me back yesterday to ask me who had told me I would be hearing from the neurologist, I told her pretty much everyone I’ve spoken to since my first visit to a&e, including the gp that I’ve seen 3 times since (I’ve been off work since all this started) The MS nurse tells me that no one had transferred my case to neurology, they had no idea I was waiting for them, I should get a call or letter end of next week/early the week after.
I fell through the cracks and now I feel like an idiot, waiting to hear from someone that had no idea I was waiting.
Thank you for taking the time to read my rant.