Hi lovely ppl…
I used this forum a few years ago when I first had some odd symptoms and initial tests…
For the last 4 years I have had a crazy journey of seeing 3 different neurologists, various tests and a huge list of very typical MS symptoms. I was initially told by one Neuro I had MS, then told by another I didn’t, then told I had a ‘working diagnosis’ but not an official one. When I saw the Neuro in July he told me that my recent eye problems were not related and stated that he would see me in 12 months & probably discharge me with CIS.
I went to my GP yesterday as my entire left side has gone numb and during my consultation, she asked when I had been diagnosed with MS… She looked shocked when I said “I haven’t” and told me that I definitely had… She went on to show me a letter from my Neuro, which clearly said at the top ‘Diagnosis: MS’!
This whole thing has been a complete farse and I feel angry that no one has actually sat me down & officially told me that a diagnosis has been made… Just wondered if this had been anyone elses experience??