I am still in limbo after 15 months of feeling rotten. I had my first mri 14 months ago for a severe headache after being concussed. Before I got my results I started with the typical symptoms of MS numbness, tingling, loss of vision, dizziness etc. The report had on non specific white matter. He decided to refer me to a neurologist. I had ataxia but he didn’t tell me if anything else was normal during tests. I had vep and another mri which showed no changes. Meanwhile I was getting worse and have had severe nerve pain and was on crutches at one point unable to walk. I have cramps, twitching and spasticity in my legs. I was then sent for emg/nerve conduction tests which was surprisingly normal. So now I’ve been coping with medication. Suddenly one day I got up and my legs felt good, the daily headaches and fatigue were gone and apart from a few twitches and fatigue I felt great for a couple of months.
Then in August I woke up with severe headache again. It has been daily like my head is going to explode. My vision is worse but my ophthalmologist can’t find anything apart from vision field defects in both eyes. The stiffness, cramps, twitching and pain are coming back and I have a spaced out feeling like I don’t belong in my body. I’ve been back to my GP and since everything else has been ruled out he decided to send me for an Mri again. My appointment came through for just a week later. I’ve been for the mri and waiting for the results
My question is how many of you had normal mri first before diagnosis and how long did it take for lesions to show up?