I am 26 and having Ms symptoms. I’ve been told by 3 different doctors that they think this is Ms except for the doctor I need to confirm it… My neurologist who I’m having trouble with.
My first symptoms started October 2013 when I started having funny turns, a few days later I woke up with blurred vision in my left eye. When I went to the doctor they sent me to the eye infirmary who noticed nerve damage on my optic nerve. 5 days later I was hospitalised as I couldn’t move my neck, it was too stiff. I also lost sensation and slight feeling.
My First MRI scan came back clear and after 7 weeks of feeling awful… Lethargic, having blurred vision, memory loss, loss of feeling, I started feeling better again. Although my eye does still blur sometimes for just minutes, my neck is still bad and my feeling still isn’t 100%. But as my MRI was clear and I felt better I put all mention of Ms behind me. I was told by a private neurologist that this could have been a migraine ( even though I told her I have never suffered from a head ache )
4 months later the turns started again. This time new symptoms came with it along with the symptoms that never went. I was dropping things, I couldn’t grip, I couldn’t remember what I was talking about mid Sentance. I felt awful, lethargic, just generally ill and ’ not with it '. And a weak left arm. I also had problems with holding in when I needed a wee, i would suddenly need the toilet and would have to go straight away there and then… A lot! I had one accident in bed where I didn’t make it to the toilet as I could t hold in. I went back to my doctor ( who I will only ever go to if I’m desperate ) and she sent me back to my neurologist. My neurologist sent me for another MRI after telling me this time that it’s probably just a virus ( so its gone from a migraine to a virus ) I had my MRI scan, this time on my neck and brain as I was still having trouble with my neck. This time there was changes on my MRI- my neurologist told me he thinks this is just due to ageing ( there was 6 months between these two scans. Can you age that much in 6 months that there is visible damage on an MRI scan? ) again these symptoms lasted around 7 weeks. Once I started feeling better again ( my neck, and blurred vision never went back to normal ) I carried on as normal and put the chance of Ms behind me.
just before my 26 birthday I had the symptoms coming on again and I knew exactly what I was heading for. This time round things got worse. I had all the usual symptoms but this time I was extremely lethargic, my left hand wouldn’t function properly, I struggled to hold a pen, I found it hard to swallow food, I had severe Weakness in my left arm and leg, I had drop foot and still have, my balance was awful, when ever I stood up to walk I had to stop and think which was bizarre. I knew what I had to do to walk, but I just couldn’t do it. My leg just wouldn’t go until about a minute after Id stand up. Again my grip was terrible. I felt awful, I also lost over a stone in just 3 weeks. This was a scary time! Again feeling desperate for help I went to my doctor to see if there could be any other course for this. I have a vitamin d deficiency so was asking if this could be the cause. The gp said its not vitamin d, it sounds like Ms, and sent me back to my neurologist. I was greeted my him saying ’ what do you want now '. Followed by him telling me that all this was in my head. Luckily I had my mom there with me who is a consultant physcologiist and she told him she had been observing me without me knowing and she knows it’s not in my head. He then done his usual examination and told me my left leg is not functioning properly… He sent me for a lumbar MRI and some electric tests in my leg ( I am still waiting for these results ). He then told me that he knows these tests will come back clear and if they do that I should see another neurologist as he may of missed something or jumped to conclusions as he has seen me for so long. He has put me on a register so that I do have the flu jab.
At at the minute I feel okay other then my left leg and neck. But this is driving me crazy!!! Is this in my head or have other people had these problems? Help!!!