I'm in a slightly better position than a lot of people in that I'm a practice manager for a gp's surgery (not my own!) so I probably have better access than a lot of people to consultants secretaries etc. But one of my gp colleagues says that sometimes you get given a time longer than necessary as to when results will be ready to stop people ringing all the time, he could be right. We get people have x-rays in the hospital in the morning and ring the surgery in the afternoon for the result!
To be honest I'm too scared to ring, I want to know and I don't. If the lumbar puncture is ok I've no idea what happens next. Will I just be abandoned? My consultant said the MRI was abnormal but not typical for MS. The thought of just having to cope alone is horrible. I forgot to take my gabapentin last night and woke at about 4.00am in pain. The thought of being like this forever is very depressing.
I keep swinging between 'everything will be fine' and everything won't be fine'. Whenever I'm tired everything gets worse, heavy arm and leg, numbness, pins and needles, burning. My job is very high pressured, even more so at the moment. I enjoy it but some days it's hard to cope and keep my 'happy face' on.
Sorry, I've had a bit of a moan but today has not been a good day.