How is everyone doing?

Thank you so much everyone for your kind words.

I’m angry at her, evil little so and so. But what annoys me most is the fact that someone like that can cause shingles and has still cost me a fortune as my solicitor had done quite a bit of work as it was going smoothly. We were doing a sort of house swap, I was down sizing as I can’t manage my curved stairs or garden, and they wanted a decent garden and the option of extending.

She’s threatened to leave the offer on the table until Friday(now Wed) and if I don’t accept her terms she’ll take her house off the market. I just asked the estate agent to say thank you, not interested, she must do what she wants to and I’ll do the same and requested that my house go straight back on the market. Even the estate agent, who’s very sedate and professional said she couldn’t believe her behaviour and was glad I didn’t go with her demands.

I actually feel quite pleased for holding my own. She’s made herself very unpopular and won’t be happy living where she does as my friends live in the complex she’s in and are a bit upset at how she’s behaved. They thought she was stuck up before this happened and were looking forward to the swap, I’d not like to be her now even though I’ve told them it’s not their argument but they’re quite disgusted.

The rash is very uncomfortable but (fortunately) I take enough painkillers to kill a medium sized donkey all the time so I’m not nearly as bad as many with shingles. I wouldn’t even have gone to the doctor if I hadn’t needed my concerns confirmed as I’d promised to take blood from an old lady as a favour and play dominoes with an old man in the nursing home I used to work at, and knew they’d not appreciate me going in and possibly putting everyone at risk. The gp has given me an antiviral because of the ms and its definitely improving.

I’m quite content now, and do believe this happened for a reason. I appreciate your comments and apologize for my essays. It just shocks me how nasty people can be and feel really sorry for those who don’t have the option, strength or support to stand up against them.

Take care every one

Cath xx

Good for you Cath! You’ll find another buyer and will find an even better property! Let’s hope that she can’t find a buyer and has to drop the price. Would serve her right. I had an anti viral for shingles and they cleared up quickly. My shingles appeared when I first had symptoms (actually I’d had symptoms for years but it was when I first realised that something was definitely wrong) and I’m sure it was because I had been pushing myself through fatigue. In the end my body said ‘enough is enough’ and gave me shingles! Possibly the same for you. Remember what Nina’s neuro said ’ If you fight MS, it will fight you back’. Take care, relax, rest, and feel better soon. Pat xx

Thanks Pat. I think fate might be telling me to avoid the house and I’m now looking at bungalows a bit further away from where I live now but nearer to shops and hospital. I live in quite an isolated village at the moment. My shingles is definitely getting better (I even got dressed today), the sun is shining though the sky is dark and I feel up to tidying up a bit. I feel very positive, I could tackle almost anything and anyone!

Life is full of hiccups, it’s how you handle them. And I truly believe that everything happens for a reason. Take care everyone and I hope you’ll all have a lovely weekend!

Cath xx

Hi Cath, I think with MS it’s best to be near shops etc… esp thinking of the future when your mobility might not be so good. I live very close to a huge shopping centre (one of the biggest and busiest in north London!) and love that I can get on my scooter and go around the shops when I’m up to it. Really makes a big difference. And think what fun it will be exploring new area! Enjoy your day… word of warning Cath… don’t overdo it! Pat xx

Hi Cath

Glad you feel a bit better, I am going to repeat Pat’s advice…do not overdo it.

A bungalow sounds good, and I think things happen for a reason, we dont understand why at the time, but later on it seems to make sense.

Have a good weekend.

Pam x

Ditto & ditto!

Take care Cath, I’m a pretty firm believer that everything happens for a reason and I hope you find the perfect bungalow and get well soon

Sonia x

Hi everyone. Thank you all again for your support. I’ve had a good think about my situation. I put my house on the market as the one I wanted was for sale, as that’s no longer an option I’m going to take mine off and resolve my problems with it. I can’t afford a bungalow where we live, I need to stay in the area as my daughter is currently doing her GCSE’s and has applied for and settled on to 6th form nearby.

I can afford to get a loo put in upstairs as I’ve a huge airing cupboard above the bathroom, a big problem at the moment, and if I get another banister on the stairs I’d be safer. My dad has offered to put a new kitchen in to make it better for me and I can still afford to pay someone to continue cutting my hedge. I love my house and garden and can make it work, and any changes I’m thinking of making will only improve the value if I need to sell it later on.

I feel so calm and pleased with my decision. I love where I live, I’ve got a good life here and if I can’t get out for the shops I can order it on the internet. My parents live nearby too, as do my friends and they’ve always offered to help me. I’m actually very lucky, I have no mortgage as I had critical illness insurance so I can save a bit every month to work towards a conservatory which I’d love to have too.

Thanks again, you’re all lovely and I don’t know where I’d be without you. You’ve helped me so much during my ms journey.

Cath xx

That’s lovely news Cath. You have made the right decision I’m sure. If you ever need to you could always have stairlift put in. Wonderful not to have mortgage. I only play the lottery on Saturdays in hope of paying off my son and daughter-in-law’s mortgage. Glad you can relax now and enjoy the loss of all that moving stress! Pat xx

Thats brilliant Cath, lovely to hear your decision has made you feel calm, no one needs stress if you can avoid it.

Sounds good what you have planned, and yes, if the stairs become a problem, then there is the option of a stairlift. Could any of these adaptations be helped by a disabled facility grant, your OT would be able to assist, just a thought.

Take care

Pam x

Well done Cath for not giving in to her demands. I hope she gets the cold shoulder from your friends who live in the same complex. Not a nice person at all. Good luck with selling to a nice, normal person! Teresa xx

Hi again.

I’ve just come home from seeing my parents and they also agree with my decision. I couldn’t get a stair lift in this house as it is almost u shaped, the stairs curving back in the middle. But if I had my upstairs loo I wouldn’t need to navigate them as often. That’s my first priority and I’ll ring for quotes this week. I hope my budget holds out for my plans. I don’t know anything about grants, I’d be grateful if any of you who know explain please.

Thanks again

A very happy Cath xx

Hi Cath

You need your OT to put you forward for a DFG from your local authority, they are for disabled people to make adaptations to their home. they are means tested, and I suspect a long forml but may be worth it if it saves you some money.

Hope this helps, I am sure if you rang your local authority, they would be able to explain it better for you.

Pam x

Hi Cath, I’m so pleased for you…it’s lovely to hear you being so positive. I really hope you can find out more about grants, I hope your OT will be able to point you in the right direction. How is the shingles…improving I hope? Good luck, Nina x

Thanks again, I’m going to ring my OT as she was going to put one of those “wash and dry me” toilets in but I held off as I thought I was moving, she also mentioned putting a banister in so I’ll speak to her, I was supposed to ring her to re evaluate my home once I’d moved anyway. I’d love a chair that lowered me into the bath as I’m too frightened to use it after getting stuck a while ago.

Thanks Nina, my shingles has improved a lot, just a patch of skin that looks dry. Luckily he put me on Aciclovir for it due to the ms so I’ve not been too bad but struggled with fatigueand had to spend most of the week in soft pyjamas as everything else scratched and made it worse. Luckily my dear daughter had forced me to buy some decent pj’s the previous week. Most of mine I’ve had for 10+ years and looking quite sad.

Take care everyone

Cath xx

Glad you’ve made the decision to stay where you are Cath and to make modifications to your house. I hope they make all the difference to you! Teresa xx