Thanks Pam, It was pretty tiring and they told me to rest for the rest of the day, so I am doing so! So hope the new meds work! Teresa xx
So pleased it went well hon. In case you don’t know, the liver makes bile and stores it in gall bladder, so makes sense why they want ultrasound. Rest and relax now. Just the sort of stress that the elf doesn’t like! Pat xxx
Thank you Pat! 
Teresa xx
I’m glad it all went well Teresa, that your worries were for nothing. I also had sedation for my gastroscopy and remember nothing about it, best way I think. I just hope the medication works for you. I know how I feel when my ulcers play up so really feel for you. Take care.
Cath xx
Glad it went OK & hope the new meds are helpful Teresa.
I got a call from my surgery earlier and have started my antibiotics phew
And I had a moment of panic earlier when the man at the agency said “I have some bad news…” but it’s just that there’s one more new starter and their checks haven’t been cleared yet, so we’ll all start next week - unsurprising that I am in my jim-jams and enjoying the extra week crimbo holiday!
I did get some bad news today… my PIP claim was rejected. I should have a call from the ‘decision maker’ by the end of the week when I can ask for reconsideration, so I am trying very hard to stay calm and serene and depending on the outcome of this call, well you all know… I will have to appeal. We’ve had to buy a wheelchair this month already and there’s actually one point that’s blatently incorrect
Calm, calm, calm
Sonia x
Thank you Cath and Sonia. Sorry about the way things are going for you Sonia. It is right to try to stay calm about your PIP claim, you don’t need the stress! Hope the appeal is successful when you get that far! Stay calm, start chanting… Teresa xx
Sonia it’s awful when they reject applications for benefits, hope your appeal goes smoothly. It’s bad enough having to apply in the first place, do you also feel that they make you feel like you’re begging? I wish I was well and able to work, unfortunately it’s not happening, I wonder if they get the impression we’re miraculously healed between claims. They definitely need re educating. Good luck
Cath xx
Hope it all goes well for your application, I wish the powers that be realised the implications of stress caused.
Pam x
So pleased it’s all over Teresa. Glad you actually were asleep for the procedure!!! Rest now… Linda x
Glad it went OK Teresa. I vaguely remember feeling them telling me to swallow and remember the gagging when they removed it, but not anything inbetween. Hope the new meds help xx
Hi Teresa, So glad it’s all done and dusted. I spent most of Monday wondering how things were going for you …in between worrying about my Dad who is 84 and lives in Florida and is unwell at the moment! So pleased the sedative worked for you…I had an internal heart scan when we lived in Spain…pretty similar to a gastroscopy,I think. The sedative didn’t do a thing for me and I have to say it wasn’t a pleasant experience . The surgeon was quite shocked when he finished and I said I’d rather have a lumbar puncture any day! I hope the new meds work and the upcoming tests won’t be too much of a trauma for you. Keep us all updated won’t you…take care of yourself, Nina x
Hi Sonia, So sorry to hear about your PIP problems…I hope you won’t give up…wish we could all write a letter for you!! When I originally did my DLA claim my MS nurse wrote a brilliant letter…I’m sure that’s what clinched it for me. You may have already involved your nurse but if you haven’t I’d certainly recommend giving it a try when you appeal. If only these folk could live a day or two in our shoes I’m sure they be so much more understanding. Good luck with the appeal, Nina x
Thanks all… my husband read thru the letter and went mad, they’ve kind of said 50/50 on lots of points, so they’ve taken the refute route and apparently I only get 4 points per section.
I feel like I’ve stitched myself up just because I try to carry on as normal.
Yes, I do still carry on working but it’s all the extras, like getting dropped at the door then my poor husband having to carry on drving to find a parking space, the fact he has to cook (so we do buy ready meals sometimes), the expense of Hotter shoes, purchasing a wheelchair (Oh, my physio suggested using 2 walking sticks), replacing clothes I can’t deal with putting on (cufflinks, really), let alone ironing!
It is difficult to stay calm, putting Thomas Pink shirts in the bin is not good for your blood pressure (glad I bought them at a retail outlet at least, I might be fussy but I’m not daft!). I do need to look smart for the job I do, so used to always wear suits and often shirts.
Sorry to drivel on, but it helps to “put” my irritation somewhere, I would LOVE to kick something really hard but that would just lead to me falling over!!!
Sonia x
Thanks Nina and Hunny, I really hope the new meds help and that I can start eating properly again. I’ve been eating ‘white’ food for weeks and want something with some flavour! I can only tolerate bland and milky food - yuk! I will never want a cup of milk again if I get over this! Sorry with all the hassle about the PIP claim. It is such a stress and worry for you Sonia. Hope you manage to iron out the problems! Teresa xx
Sonia… do you belong to benefits and work? They will give you step by step guide for appeal. I was refused DLA till I followed their guide. You have to have membership which is about £20 a year (but SO worth it) however they have a 20% discount till midnight tomorrow. Just google ‘Benefits and Work’… really worthwhile… and anyone applying or appealing benefits, it is so worth joining. Pat xx
Thank you Teresa & Pat. I have spoken to them today and told them quite blunty that I missed a call yesterday (as I can’t get down the stairs too quickly) and cannot be available to wait for the decision maker to call me sometime next week as actually, I do have to try to continue to work, funnily enough! The re-review needs to be requested before an appeal.
Their published info says I can request a ‘mandatory re-review’ and I can do that without waiting for the call… the lady I spoke to was going to email the decision maker with details of our conversation and she suggested as I had issues with incorrect & contradictory information in the report, to write to them (to make sure everything was covered) and she’d make a note of my availability today & Monday… so we’re gonna write if he/she calls or not.
I’m seeing my MS nurse for the first time too on Monday so I’ll ask for her input.
Pat, no I’m not a member but we’ve had a good look at the DWP website and there are issues with the report we’ll request the re-review first. If it comes to an appeal then I guess I’ll join
Soniax
Hi gang, Just thought I’d let you know that the new drug called sucralfate is really helping! It is such a massive relief. Things are not totally better but bearable now and I can eat much nicer food again. Also, had my first cup of tea in a month yesterday! Tea has been too painful to drink up to now. I actually ate some Christmas chocs last night too and they didn’t cause me any trouble! Teresa xx
Can’t think when the last time was when a post made me so happy! I’m so pleased for you Teresa. I didn’t have acid nearly as bad as you but it made my life utterly miserable. Eat a choc for me hon… Love Pat xx
Oh Teresa that’s such good news. Get those Chocs down you… Linda x
Thanks Linda - great minds think alike! As I write I am chomping on cadbury’s mini eggs! I lost loads of weight so can afford to indulge in some choc. Oh boy! Have I missed it! Teresa xx