I was diagnosed with RRMS 10 years ago aged 17, but only ever had 1 relapse which led to diagnosis, since then i just gradually et worse - legs/mobility/bladder), so guess its classed as secondar progressive MS now
i had an MRI scan (lesions in brain and lower spine), blood tests and a lumber puncture, then several weeks later, after i hassled the neurologist for answers, he then said i had MS, i akways queried why it took so long to diagnose me,
well since then i have tried many MS treatments, and they all seem just to make me feel worse! the opposite of what they meant to do
i have tried lyme disease treatments (after a false positive test), hyperbaric oxygen therapy, upper cervical chriopractic treatment, the Wahls diet (gluten, dairy, soy, legume , grain free diet, i just eat organic meat and veg/fruit)
Only one treatment has worked = LDN Low dose naltrexone, whoch ive used for the past 4 years paying for it on a private prescription, but since starting the diet this has failed me too
So as treatments seem to make me worse, i cant help but think i have other underlying conditions, so want to see a a recommended neurologist at the Royal London Hospital
i have read about Transverse Myelitis which seem to fit my symptoms closer - lower body weakness, bladder/bowel incontinence, weight loss, upper body is fine and healhy.
I am due t see my GP tomorrow (Thurday), but i dont know what to say to make sure he reffers me to Royal London Hospital neurologist?
I wouldnt mind another MRI scan and diagnostics as its been 10 years since ive had any, but i mainly want a second opinion on my MS/health
any tips on my reasons for a second opinion/analysis, which will get me the appointment/referral at London royal hospital?
Also, as i am following the Wahls diet which doesnt seem to be helping, i want to get tested for food sensitivities/allergies, as this could be why im worse,
same goes for why i want my Calcium/Magnesium/Zinc/Copper levels tested …
is there anything i can say extra to get the food sensitivity and nutrient level tests authorised?