I am so utterly disillusioned with the NHS, it’s unbelievable. I have seen a number oif doctors and nurses over the past year and while some of them were nicer than others and some doctors more competent than others, I am sure most of them did whatever they could to help me. But I feel like there really wasn’t much they were permitted to do! I am so thoroughly convinced by the principle of the NHS to provide equal healthcare to all, no matter how much money they have that it took me ages to realize this!
I’ve been having symptoms since April at the latest (it is quite hard to tell in my case as I’ve not had clearly distinguishable episodes). In July, they finally did an MRI where they found lesions. I have been frequently misinformed about them: first, I was told there was just a lesion in my spinal chord, but not in my brain, as I read the MRI report, it said that ther was one lesion in my brain and one in my spinal chord, but I recently found out that there were several lesions. My symptoms kept getting worse, I could hardly walk anymore and was told that my first appointment ith a neurologist was still ten months away.
Luckily, I am originally a German citizen and could re-activate my German health insurance. After seeing a neurologist over here, I was admitted to hospital for a week where another MRI, LP, massive amounts of blood tests and even a gastrocopy were performed and I was put on a 5 day cortisone drip. My symptoms are still not entirely cleared up, but with physio and the proper meds I may get back to some state of normalcy. However, I feel like there is no way I can trust the NHS to provide the care I need. Thank God I have the enormous privilege to not have to rely on it and I hope that by taking myself out of this system, somebody else may profit from it. I’m not entirely sure what will happen in the future, but I’ve taken time off and will start treatment here until I can get over the fact that, if I had followed the NHS schedule on this, I could have ended up in a wheelchair. Furthermore, their complete over-prescription of ibuprofen against my chronic pain may have damaged my stomach lining to an extent where it caused a severe vitamin B12 deficiency, which might have made my symptoms worse (although I still need to wait for test results on this).
I am so disillusioned with the NHS at the moment, I’ll probably have to move somehere else in the UK to be closer to an airport… I know that I may still be in a state of shock and utterly alarmist, it’s probably just the remote part of Wales where I live where it is this bad, but this is so far from what the NHS is supposed to provide! I get the feeling that those ho are not privileged enough to go private really have no hope if they are sick!
I apologise for my over-privileged, probably naive rambligs, I’m really just in a state of shock and still surprised how easy it suddenly was once I got here.
I sincerely hope that my difficulties in getting help are an unfortunate exception!!!