I have been living overeas and I'm due to come home for good in the next month :)
So far I have been very lucky (overseas health insurance) and had a speedy DX process with MRI, LP and VEP tests all being done in the last 3 months, and all showing results indicating MS. My neuro has said it is highly likely that I have MS.
In order to DX MS he has suggested another MRI to see if new lesions have formed over the last few months (I've had a few mild events, nothing significant I dont think, just numb face, tongue, neck etc..). My first question is, would a neuro in the UK suggest another MRI in this situation without significant new symptoms? My observation from this forum is that it is like trying to get blood out of a stone getting full testing even with significant symptoms (eg, people being given MRI on brain only and not spine, and without contrast...) Should I make sure that I get the full MRI done before I come home?
My one and only lesion is in c-spine and my brain was clear, so I'm aware that I probably would have been swept under the carpet if I'd had my first MRI in the UK! I doubt they would have even done LP and VEP, of which I failed both!
Also, if I get a full DX here, do you think that would be honoured, or would I be reassessed once back in the UK?
I read such awful stories on here about people really struggling with being taken seriously, and seeing GPs and neuros who just dismiss them. Does this happen on the NHS and privately? Is it worth paying for private treatment? I have heard of MS nurses - Do you have to have a full DX to have an MS nurse, or can you have access to one when you have a "highly likely" DX?
Also, any recommended neuros in NW England?
So many questions, and i know most are vague, but any opinions much appreciated TIA