Hi, just wondering how my mother who has MS can talk to a nurse with regards to symptoms and everyday living. She gets an MRI maybe once a year and maybe a phone call with a consultant once a year to discuss symptoms but I really think she needs support like a nurse to help her. Thanks
contact your local neurology department and the doctor who she dealt with, not all areas have MS nurses sadly. she can join MS groups and check with the society where her nearest one is.
1 Like
I’ve tried contacting my ms nurse on numerous occasions being told someone will call me back and 4 weeks later no reply . I’ve got new symptoms which are impacting myself daily hoping my symptoms go away but they have not unfortunately
I would contact your doctor as not everything is MS. the problem with MS nurse they are rarer then hens teeth. so if you have concerns please talk to your doctor and they should be able to sort it out for you. xxx
I know in some areas in the uk they have community neurology nurses, they tend to use the same telephone number as the community team, you leave a message and they’ll contact you regarding concerns. Your mum should have been assigned a nurse when diagnosed , but like the others have said consult with your GP because they should be able to assist or refer your mum to the appropriate help she needs.
I hope you manage to get some help and support for your mum.
Hello there, as far as I’m aware, the MS Helpline has MS Nurses you can talk to. They won’t have your individual records but, they can talk to you about all things MS. Good luck
In the U.K. some MS Nurses are embedded in the hospitals while others are based in the community.
The embedded nurses will tend to deal with patients in the locality of the hospital.
Those based in the community will tend to be in areas away from hospitals with specialist MS departments.
If you contact the secretary of the consultant they should be able to make this clearer and give you contact details.
The local health website has the contact details of my community MS team and anyone with a confirmed MS diagnosis registered with a GP in the county can contact them.
Her GP could also refer her and there may be more appropriate services such as physio.