Hi, not diagnosed here but my recent trip to the neuro was shocking to say the least and I have a gp appointment soon to see about a second opinion as the neuro was rushed to say the least.
I am now writing down my symptoms and making a graph/timeline to show how/when they presented and I am just wondering how everyone’s ms symptoms presented?
My symptoms right now flared up in febuary, worsened in april, flare up lasted around 2/3 months, slowly died down to what i would call “baseline” symptom’s (the ones that are always present but im use to), flared up again in october spreading to the rest of my left side, lasted around around 3 months and then has slowly gone back to what I think is my new baseline (basically old baseline symptoms that have spread over my left side w the flare up). I know ms is a case by case basis but I was just wondering if anyone had anything similar to that? Not trying to diagnose myself by the way.
Every one of us has a different story, based on what nerves are affected. I started with multiple sclerosis, and my second symptom was neuropathy in both hands 1 year later. Truly, there is not much you can do other than having the tests done, and wait. We are blessed with good doctors. If youe symptoms come and go, the type of MS you may have could be RRMS. Your doctors will tell you. I have RRMS.
For me, the symptom(s) that started my journey to dx began with a weird numbness/tingling in my left hand which rapidly spread up my arm, intensifying and becoming more painful, and now covers pretty much all of the left half of my person from head to toe; I developed L’hermittes (electric shock sensations down my spine and into my arms/legs when tucking my chin to my chest); this was in 2013 and these symptoms have never gone away; fatigue and balance issues came along, and have never gone away; bladder retention issues gradually developed over a 5 year period leading to eventual dx from follow up full spinal MRI showing 4 new lesions. From weird feeling in hand to dx took 9 years, and the above (and other) symptoms developed during that 9 year period.
Hello @lotus
For JP, it started with eye floaters and constant nose bleeds and feet pins & needles during primary school, optic neuritis pain during secondary school and then temporary loss of vision in right eye; I was dx a year later --I think it usually starts with the subtle symptoms b4 boom it was all because of you, multiple sclerosis.
Best regards.
hi! sorry for the late reply but did these ever come in “episodes”? not like they came and disappeared but were really intense, dropped to a and then came back again intense/with more symptoms
my symptoms dont fully go but are really intrusive for 2+ months and then slowly come back down to being bearable enough i can function a lot better and “tune” them out. thats just going off two “episodes” though. the second caused symptoms to spread further on my left side but im now in the “bareable” period and the symptoms are still where its spread to just bearable.
sad it is a waiting game. currently on the list for a second opinion. im hoping i see a good doctor this time even if i have to wait for it.
For me, relapses always come in peaks and troughs --that’s just the nature of Relapse-Remitting Multiple Sclerosis.
Unfortunately, the severity of the relapse usually comes with the disease progression, over time.