I had an appointment for thr neuroon the 27th of this month. Last Friday I got a letter telling me that due to unforseen circumstances it was necessaty to cancel the appointment and a new one sent to me in due course. Seeing as it had been over 2 years since I’d seen a neuro before I’d got an appointment 8 months agomy expectations of getting a new appointment are small to non existant,
Then today I recieved a phone call caceling an appointment with the MS nurse as she was ill, fair enough I have no problem with that, but in the course of the conversation the MS nurse (not the same one) told me that the neuro appointment had been canceled by the nurse I was speaking to because i’d been seeing my nurse every week, an absolute lie, I had been seeing her every 4 weeks for a few months because of emotional problems (my son died in a motorbike accident) which she gave me great nd sympathetic support.
I explained that my symptons had got worse over the last 4 or 5 weeks to which she said was impossible in such a short time even though I’m the one who has extra walking problems with a frame and has fallen and needed help from the ambulance to be lifted up as I can’t do it myself.
I’ve always, and still do have great respect for the NHS, but after this latest debacle neurology has no standing with me at all, I know my MS nurse is good but that’s it. All I want to do now is give up with the hospital and go and join my son in perfect peace.
Sorry for carrying on so long but I just had to put my thoughts into words. Thank you for your patience in yeading this