So on Tuesday I am being admitted to hospital for a LP, MRI with contrast and nerve function tests. I am being admitted just because of where I live and it’s cheaper for them to keep me in then fly me up and down the whole week.
I am very nervous about the whole thing, which is difficult for me even to admit, I am the person others talk to about their problems and worries normally!!!
I have been told by my gp that I will most likely return home next weekend with a diagnosis and the way they speak its like they have already decided that I have MS.
I am going on my own and I dont have any friends or family who live anywhere near the hospital!
Im worried about getting my diagnosis and not taking anything in or even asking any questions
Will be thinking of you. It’s not as bad as you might think, my experience was a lot better than I thought. Spent a week in hospital MRI and LP but everyone was really nice and kept me informed all the way. Got dx after 2 weeks last September, but nobody really knows how YOU feel so just try and go with the flow (sounds easier said than done!) I read loads and it was a bit like an all inclusive but I didn’t have to pay so quite relaxing. Please let us know how it goes take care.
All the best for next week, I’m sure you will be well looked after.
Look on the bright side, all your test will be done in one go…you’ll be back home before you know it.
Like you, I’m the type of person that usually sorts other peoples problems out. It makes you feel quite vunerable when you have to concentrate on yourself.
Keep coming on this forum…we’ll watch out for you next week.
Thanks for your words. I’m hoping the hospital has wifi, I hope it does!!
I have no idea how I am going to react if I get the ms dx, I work as a lifeguard so it will effect my job greatly. Suppose, I’ll cross that bridge if it comes!
Sorry, thinking out loud!
Look out for me and I’ll try to keep you all posted (I’ll need the distraction!)
My thoughts are with you. Message me if you want to just pour it all out to someone anonymous. I am as yet undiagnosed. Seeing my neuro this week again after another 3 month wait.
Good luck, hope it all goes smoothly. Take a pen and paper and then as questions occur to you, you can write them down and that will help you make sure they get answered.
Since you won’t have anyone with you, is there any way you can record your conversation/s with the doctor? Being diagnosed can be overwhelming, even if you expect it, so having a recording to listen to later may help you take in other things he says, like what happens next.
Hi Saz, Wishing you the best of luck for tomorrow - just been for all the tests myself - none of them were that bad - and now waiting for results. Thinking of you and hope the hospital food isn’t too grim - in my experience anything with cheese sauce is best avoided. Sarah x
Well I’m back home and have been told that I have what is called chiari malfunction which is when a party of your cerebellum (?) Drops down out of your skull and is pressing on my brain sten/ spinal cord. Still trying to read up about it at the moment, butbi hsvr been assured that I do not have ms. The neuro’s are having a meeting about me this afternoon to decide what medication’s I could try to help with my symptoms.
Apparently they are very interested in my case because of my sudden onset of symptoms and so will be using my mri scan pictures and clinical notes to educate junior doctors!!
It is still a bit of a shock especially after being told to expect a dx of ms but I think it is starting to sink in now
Thank you all for your advice, support and care during my diagnosis, you have all been amazing
I wish you all well and the best of luck for all your futures
Well I’m back home and have been told that I have what is called chiari malfunction which is when a party of your cerebellum (?) Drops down out of your skull and is pressing on my brain sten/ spinal cord. Still trying to read up about it at the moment, butbi hsvr been assured that I do not have ms. The neuro’s are having a meeting about me this afternoon to decide what medication’s I could try to help with my symptoms.
Apparently they are very interested in my case because of my sudden onset of symptoms and so will be using my mri scan pictures and clinical notes to educate junior doctors!!
It is still a bit of a shock especially after being told to expect a dx of ms but I think it is starting to sink in now
Thank you all for your advice, support and care during my diagnosis, you have all been amazing
I wish you all well and the best of luck for all your futures
Well I’m back home and have been told that I have what is called chiari malfunction which is when a party of your cerebellum (?) Drops down out of your skull and is pressing on my brain sten/ spinal cord. Still trying to read up about it at the moment, butbi hsvr been assured that I do not have ms. The neuro’s are having a meeting about me this afternoon to decide what medication’s I could try to help with my symptoms.
Apparently they are very interested in my case because of my sudden onset of symptoms and so will be using my mri scan pictures and clinical notes to educate junior doctors!!
It is still a bit of a shock especially after being told to expect a dx of ms but I think it is starting to sink in now
Thank you all for your advice, support and care during my diagnosis, you have all been amazing
I wish you all well and the best of luck for all your futures
hi saz,how long did you wait before you were admitted and how long where you in hospital,i am getting admited for the same tests,seen neuro last thursday,now just waiting for date
I got a letter through last week for an initial appointment with my neuro for 23rd June. Luckily I have an amazing gp who got straight on the phone and some how managed to get me admitted.
I was in hospital for just one night, after they saw what the mri results were they didnt need to do anymore tests.
thankyou for the reply saz,my neurologist already has mri,its showing 3 white spots (they look pretty big ) he just said he wants to do a lumber puncture some eye tests as he is concerned about my eye problem i’m having at the moment and some other tests i cant remember what the other test were,it was hard to take everything in as it was my 1st neuro appointment and i was on my own so i didnt have the help of someone else remembering for me lol…lets hope i’m in just for the 1 night
I am as yet undiagnosed. Seeing my neuro this week again after another 3 month wait.