I had an appointment at the pain clinic this morning for chronic nerve pain that I have. GP has been telling me over the weeks that I should keep a symptom diary of everything that is going on and to take it with me today to the pain clinic.
Wish I hadn’t bothered going to be honest. Total and utter waste of time. The Doctor was an obnoxious and rude man who was incredibly hostile. Basically told me he had no idea why I was there and I should just accept that I have pain and to move on. I got incredibly upset (emotions all over the place at the moment anyway) and told him that the reason I was there was because GP had sent me, and had told me to bring symptom diary and explain everything that has been going on. I also told him that I ound him to be incredibly hostile and rude!
Anyway, he begrudgingly did a two minute examination, told me there was nothing wrong, and directed me to a couple of self help websites!!! Basically told me to get over it and learn to live with it!!! He has sent me for some blood tests “purely to dot the i’s and cross the t’s because I am sure they will all come back normal”. Needless to say I was in absolute hysterics when I left! Worst appointment I have ever been to - I was made to feel like I am making the whole thing up.
Yesterday I had a 5 hour severe tremor in my right arm. I just happened to be at my Dad’s at the time, and it is the first time my family have seen my tremor in action and he was horrified!
Going back to the GP again this afternoon. Sick of just being dismissed. Already decided I am taking mydad with me to my Neurology appointment so he can give me some support!
I went straight to my Dad’s after the appointment and told him what had happened. He was so angry he made me contact PALS there and then. I rang them, and they asked me to put it all in an email, which I have now done and sent.
Managed to get in and see the GP this afternoon. That was a little better. Blood tests Wednesday then just waiting for results of those and then neurology appointment. Desperately hoping that blood tests show something, at least then I will know what the problem is and they can treat it! They are testing for vitamin deficienies and stuff apparently.
I went straight to my Dad’s after the appointment and told him what had happened. He was so angry he made me contact PALS there and then. I rang them, and they asked me to put it all in an email, which I have now done and sent.
Managed to get in and see the GP this afternoon. That was a little better. Blood tests Wednesday then just waiting for results of those and then neurology appointment. Desperately hoping that blood tests show something, at least then I will know what the problem is and they can treat it! They are testing for vitamin deficienies and stuff apparently.
Good luck with Neuro appointment anon. Good old dad’s…don’t you just love them. My dad’s gone now…I’m 57. I can remember the times he was there for me…making me feel safe. Good memories. Take care
Some doctors are so insensitive! The neurologist I saw ten years ago for me symptoms told me I was imagining my symptoms as the mri was clear. I made my appointment at a different hospital this time.
Hi Sweetie, What a horrible rude doctor you saw. Good for you for complaining to his face . Also putting it in writing to PALS like you did essential. No one else should have an appointment like that. Please don’t give up on trying to manage your pain better. There will probably be specialist nurses in pain clinic. Who will be a lot more empathetic and helpful unlike your horrible doctor. Perhaps your GP will know or even PALS might be able to connect you. Good luck and keep strong Min xx
I am going to be asked to be referred to a pain team at a different hospital. The one at my local hospital is just dreadful through and through. I had my gallbladder out last summer and the surgeon managed to nick a nerve in the process. Happens occassionally apparently, I just got unlucky. However when they bought me back round in recovery, I was screaming in pain - took them by surprise somewhat! They didn’t really know what to do with me so filled me up with drugs, and I was in for 2 weeks after surgery while they tried to sort the pain level out for me. Anyway, where I am going with this is that the Pain Team came to see me on the ward, and were very patronising and no help whatsoever - right up until my lovely consultant surgeon happened to appear at the end of my bed at the right moment and tell the Pain Nurse exactly what she needed to give me in the way of drugs. She shut up after that. So maybe going to see a different Pain Team might give me some better insight.
I slept well last night, 10pm ish through to 7.30am, bar a couple of pit stops in the night for a wee. However I was so absolutely exhausted that I took my daughter to school, went back to bed at 9.15am and slept right through until 2.45pm, and I still feel utterly exhausted. This is what happens when I have a busy couple of days now it seems! I miss not feeling constantly fatigued.
I am going to be asked to be referred to a pain team at a different hospital. The one at my local hospital is just dreadful through and through. I had my gallbladder out last summer and the surgeon managed to nick a nerve in the process. Happens occassionally apparently, I just got unlucky. However when they bought me back round in recovery, I was screaming in pain - took them by surprise somewhat! They didn’t really know what to do with me so filled me up with drugs, and I was in for 2 weeks after surgery while they tried to sort the pain level out for me. Anyway, where I am going with this is that the Pain Team came to see me on the ward, and were very patronising and no help whatsoever - right up until my lovely consultant surgeon happened to appear at the end of my bed at the right moment and tell the Pain Nurse exactly what she needed to give me in the way of drugs. She shut up after that. So maybe going to see a different Pain Team might give me some better insight.
I slept well last night, 10pm ish through to 7.30am, bar a couple of pit stops in the night for a wee. However I was so absolutely exhausted that I took my daughter to school, went back to bed at 9.15am and slept right through until 2.45pm, and I still feel utterly exhausted. This is what happens when I have a busy couple of days now it seems! I miss not feeling constantly fatigued.
