Hi there,
I was wondering if anyone knows somebody with advanced MS who when eating is holding their food in their mouth. My husband has not got swallowing issues but for the last 2 weeks holds everything in his mouth.
I have had to scoop out everything from his mouth in case he chokes.
He has been in hospital those 3 weeks due to a twisted bowel…now dealt with.
Very stressful time.
Hi lushcaz. Just to say I feel for you. My aunt had advanced MS but I can’t remember or didn’t hear anything about her holding food in her mouth. Have you asked/ contacted your husband’s MS Nurse about it?
Hi there,
My husband’s MS nurse is away at present, but the speech and language team are due to see him.
Not sure this is the same issue, but spotted it on facebook and thought it might be of interest.
Multiple Sclerosis Trust | Facebook
“Literally forgetting how to swallow or is it just me”
Dysphagia In Multiple Sclerosis Patients: Diagnostic And Evaluation Strategies - PMC (nih.gov)
Hi all,
An update on my original message.
Sadly my husband died on the 7th May of Advance Primary progressive multiple sclerosis. After 26 years it finally caught up with him.
I feel like a part of me is missing.
We were together 42 years. 26 of those years with MS.
I am so sorry to hear this. My deepest sympathies and best wishes to you
I had the pleasure of meeting Richard at a yoga class in Soho, many years ago. It was clear to me then that he was determined to do his best to maintain condition and regularly impressed by how supple he was.
A fine man and I am so sorry to hear of your loss.
Hi there,
Yes I met you also at a MS convention many years ago.
I kept him safe from covid but I could not stop a progressive illness.
However being on the ball kept him alive longer than the experts expected.
I am really sorry for your loss x