Well I have plucked up the courage to post again. Some of you may have seen my last post and it hit me a lot harder than I expected. I was worried people wouldn’t accept me again after it. (Stupid I know, you are all so lovely. Special thanks to treek for the support x) I am struggling at the moment but then I feel bad after reading some of the posts here and seeing what others are going through. I am in so much pain and my balance is terrible. I’m having trouble getting my right leg to do what I want it to do. The pins and needles are driving me insane. It’s bee 7 weeks since I saw the Neuro psych and still no report and no one will do anything until it’s done. I am so fed up with it all. Sorry moan over Xxx
Hi, well I cant remember your last post…been away and memory aint that great! Anyway whatever you did to make you think you wouldnt be acccepted back is a mystery to me now! Lets move on again and forgetwhatever it was…I already have!
In my experience, reports from docs can take forever to arrive…and sometimes not at all.
Why not ring his sec and ask if the report has been done yet? They can`t shoot you for asking!
Failing that, do you have an MS nurse to contact?
My legs haven`t done what I want them to do for eons!
luv Pollx
Hi Nikki, I was only thinking of you yesterday wondering how you were? I understand about balance issues, yesterday was pretty bad and I just burst into tears whilst doing dinner! It just gets to you doesn’t it? Still no report after 7 weeks, that isn’t good. I really feel for you, hugs x Sam x
Hi
I’m sorry I didn’t see your last post, but it sounds like you are
really going through it, so sending you some (((((((hugs)))))))))
to help make you feel a little better.
Take care
Pam x
Good to see you back. Sorry you are having such a rough time.
Alison
x
Glad you’re back Nikki and there’s nothing to hold against you. You haven’t done anything wrong - we’re all entitled to let off steam once in a while - we all understand.
What Poll has suggested is a good idea. I would ring the secretary. Don’t give up.
Really am pleased you’re back.
Reemz
X
Lovely to see you back Nikki. Do not worry, you were nothing but brave. Hold your head high and keep believing in yourself! Sorry you’re feeling so cr*p. It really gets you down, doesn’t it? As everyone says, do not give up, contact the neuro’s secretary and see if you can get some answers. Lovely to see you again - keep your chin up. Teresa xx
I can’t remember your last post either! (An advantage of an MS forum - a lot of us have crap memories!)
Glad to see you again 
Do phone the secretary - it’s not on that you’ve been waiting so long 
Karen x
Thanks Nikki!
So glad you decided to come back. Was pretty worried about you tbh! phew!!
You can still pm me if you want to chat anytime.
I don’t know what you were worried about really - as you can see - most people on here have the memory of a goldfish! lol!
Treek. xxx
Hi nikki, and welcome back, its strange I was only wondering. how you were yesterday. F.
Yep I too am in the cant remember club…and anyway what difference would it make to us.
The value of this forum is that it offers a safety valve to let off steam.
Glad to see you back,duno if you have been reading posts while away but I know Kizzydane and you used to have a laugh and she is in need of a friend aswell at the moment.
Take care and keep on at the secretaries.
Pip
My ms affects my memory, ha ha, the only upside!!! Phone the secretary and ask if it has been done. I am now on first name terms with the sec and to be honest she will be on my Christmas card list this year. If it hasn’t been done ask her if she will chase it up as you are in pain and also tell her how low you are. If it hasn’t been done tell her you’ll phone again next week and thank her in advance for her help. Keep phoning and don’t be put off, it is easy to be fobbed off as I know lots of people are in the same boat. Ask for her name and use it when you speak to her, it then becomes personal and I have found this helps. The sec I speak to me tet slip she had a daughter starting school and I always ask after her! Good luck Nikki, we’re here for you! Chis
Thanks for being so lovely. Teresa I don’t feel brave I feel a total loser if I’m honest. I chased up the secretary on Monday and she was quite stroppy with me. She said it couldn’t be helped that it had taken so long because the psych had hurt her hand (dictaphone maybe!) Well it arrived today and I might as well have written it myself. It pretty much said the same as the referral letter that was sent to her! No mention of any of the symptoms I told her about so guess I’m back where I started since she didn’t rule out anything psychological. I knew she wasn’t listening at the time. As soon as I went in she told me I was her last patient then she was off on holiday but hadn’t even packed. The whole time I was I there she just kept glancing at the clock. I feel so disheartened again. No one is ever going to help me.
You are not a loser Nikki - I stand by what I said. It was a really brave thing to do in an effort to help someone else. As for the neuro - you are getting nowhere fast with that one aren’t you? Could you see your GP again and perhaps ask for a referral to another neuro once you have explained what happened? You will get some help, I’ve recently felt the same way about increasingly worse bladder problems but eventually I got some help. It’s that horrible waiting game all the time, isn’t it? Try to keep your chin up, you are doing really well. Thinking of you, Teresa xx
Thanks Teresa. You are too nice to me. I have just called the gp and they are going to see if she can call me this afternoon. If not it will be Tuesday. I feel more in limbo than ever now I’m glad you got some help. Xxx
Thanks Nikki Hopefully the GP will call you and be able to give you some help or support. Take it bit-by-bit. Don’t think about how much time has elapsed or the constant waiting. Try to get on with life as best you can and things will not drag so much. Easier said than done I know! Just keep in touch on here with all of us and we will try our best to lend support. Keep going though girl - I know you can do it! Teresa xx
Hi Nikki
You musn’t give up.
Didn’t the neuropsych say to you your assessment was normal. Why hasn’t this been put in the letter then?
You could ring the secretaries and ask for a call back from the neuro psych abnd speak directly to her if she has omitted things from her letter. If you’re not satisfied she should see pals. You’ve gone through the trouble and heartache of putting yourself through a psych assessment and then if she was distracted and hasn’t done heer job correctly its her fault - you shouldn’t suffer for it.
Keep up with the GP in the meantime and see as Teresa said whether you can get seen.
Reemz
X
Well I’ve just rung the and begged for her to call today. I am in so much pain I can barely stand, the pins and needles are worse than ever and all one side of my face feels like it’s on fire. I havent been given any medication and I’m not sure I can cope with this for much longer.
Did you get any help today from the GP Nikki? I hope so, Teresa xx
No I didn’t 
She hadn’t seen the report because it wasn’t on the system but I told her about it. She agreed it wasn’t much help and said I should think over the weekend if I want to go for a second opinion. I said I did and she said to go in next week. I told her I was struggling with symptoms and she said we will talk about it next week so I have to just struggle on. I’ve been I tears most of this evening I just want it all to go away.