I am a 32 year old female and have been having neuro pain and symptoms on and off for over 2 years, i had an mri of my brain which was clear 2 years ago and was discharged from my neuro when i fell pregnant as all my symptoms cleared up and they couldnt do any more tests.
Two years on and i have been bounced from rheumatology to neerve conduction and finally back to neurology. I am now on my 4th 'episode' of symptoms. My first affected my eyes, i had terrible pain and visual disturbances but no optical neuritis. The next 2 'episodes' were in my legs and feet which included pain, burning, tingling etc. My current 'episode' is my hands, they keep going completely dead, more so at night, my arms and hands are so sensitive and i feel like there is constant pressure on my funny bone or on nerves all the time.
My doctor has prescribed me amitryptiline and referred me back to neurology.. I saw my neuro 2 weeks ago and he mentioned 'cervical crod syndrome' although this is not consistent with my previous 'episodes' and i have never had any kind of accident or trauma that could have caused any damage to my cervical spine. I received the letter today that my neuro has sent to my doctor and it says upon examination i have 'brisk reflexes, clonus bilaterally and an upgoing right plantar' I didnt really know what these meant so have had to look them up and i just keep looping back to MS. This has been my suspicion for the last 2 years anyway but now they are finding consistencies with MS that i didnt even know i had.
The clonus in my feet is so bad that they ache terribly, my muscles jerk constantly, they never rest, this doesn't yet affect my walking or balance but it does make me uncomfortable and extremely twitchy.
I am now awaiting an mri of brain and cervical spine and a lumbar puncture appt but i am worried that even when these are completed that i still wont be any closer to a diagnosis, am i right to think this? I do feel good that for once they are taking me seriously and have found symptoms themselves rather than me listing them but i'm just exhausted and want some answers now, being in limbo is exhausting :(
Sorry for the long post but i rrally dont have anywhere else i can let all this out. xx