I am new here, this is my first post. I am writing as I need some advice regarding diagnostic process ( if this topic has been developed before please accept my apologies).
I am a 34 year old female and last December, for the very first time I started experiencing strange symptoms including:
-waking up with numb hands and pelvis,
- grey spot in the middle of right eye, eye pain
-extreme fatigue exasperated by heat (sun exposure ,hot shower),
-tingling and numbness in hands and feet, coldness in hands, fingers turning white
-muscle cramps in legs, shooting pain in face and in the back
-urinary track infections and urinary urgency
leg and hands weakness
lack of balance
speech problems and hoarse voice
tightness in chest, often at night
These were subtle at the beginning, getting worse over weeks until I had an attack and got briefly partly paralysed - hands and legs turned wooden, couldn’t move them. This lasted an hour and went away.
Symptoms kept lingering and finally subsided after three months.
Was referred for tests, lumbar puncture negative, blood tests - chronic low white count, C4 low, MRI brain showed tiny spot, spine normal. All other conditions were excluded by blood tests (like lupus,lyme, hiv etc).
After those tests neurologist discharged me, saying its not MS.
At the moment I am still getting the same symptoms (without the paralysys) almost every day but they are very subtle, somehow just lingering in the background, unless I overstretch my self with exercises or expose to heat, then they come back stronger.
Obviously I am pleased that some of my tests were negative but am left in limbo and wanted to ask whether there are any other tests you would know of I could possibly do/push for in order to get an answer to what is going on with my body.
If those symptoms went away completely I would not be bothering with wanting to do more investigations, the problem is that they are not going away and have already started to cause me problems and interfere with my job.
I am aware that this could potentially be an very early stage of MS and that starting the right treatment early is also important that is why I wanted to ask for an advice and suggestion what I could do to help myself in this situation.
Or whether wait and see is the only answer.
Thanks for reading!