Hiya guys and gals, Thought it was about time I joined up to an MS forum 
I was diagnosed with MS on 1st June 2010 after years of wondering why I was getting ill? It all started in 2005 with severe vertigo, vomitting And unable to stand or walk properly which resulted in being admitted into hospital because I was so dehydrated and felt like I was gonna die? Sorry but it’s the only way to describe how I was feeling at the time. Anyway after 6 bags of saline and something to stop me being sick I was kind of ok? Still ill but felt better than I did. My memory sucks but I think I was rushed into hospital again the next day with the same symptoms. Anyway I recovered and docs basically said we don’t know what’s wrong with you? So there’s the door. 6 months later in 2006 I started to feel very dizzy and than it started again! Vomitting and vertigo and unable to stand up so had to crawl to the bathroom to be sick but this time it was worse! A lot worse! As i lost function on one side of my body and i actually thought i had a stroke? And lost co ordination with my hands and arms. Once again I was carted off to hospital and given saline and a drug called semetril to stop the vomitting etc… I had an MRI scan this time which I found unbearable and was sent home the next day. The day after I was rushed back into hospital again with terrible spasms to my jaw and neck and was given diazepam, they said it was a reaction to the semetril and I shouldnt take it anymore. Anyway I get an appointment with a neurologist! This guy must have been about 80! And he showed me my MRI scan and he pointed out this blotch and said that the MRI wasnt very clear and he wanted me to have another scan to determine what it was. Ooh and what he said made no sense to me what’s so ever and he leaves me by saying that this is his last day as he’s retiring and someone else will be dealing with me. I left that building feeling so frustrated and angry! I wanted to ring that old mans neck like a chicken!. Oooookay so a month later I have another MRI scan and told if there’s anything to worry about than we’re be in touch. This is the scary part…2010! Yes that’s right we are now in 2010 and I visit my GP surgery for a checkup with a new doctor and she’s looking through all my notes! She says “did you ever get your MRI results?” I said no cos I never heard anything I thought everything was ok?. Anyway she had contacted the hospital and they had no records of me?? So basically they lost my medical notes! So off I go again for another MRI scan and then got an appointment with another neurologist! This time I told my husband to stay home and look after the kids cos knowing the hospital there gonna say we still don’t know what’s wrong with you!!. Anyway the doc sits me down with a nurse and breaks the news to me 
it also answered a lot of questions about my symptoms over the past 5 years. My MS has progressed slightly over the years but they main thing is I can still walk etc but I have lost some of my independence and that’s we’re my husband steps in and helps. Anyway I’ll leave it there cos I really do go on… Lol
Welcome to the site… you carry on and go on… thats what we’re all here for x
This site is my back bone and dont know how I managed before it… anyways as I say welcome to you…
Diagnosed May 2011… suffered for 3 yrs, no one took any notice… physios told me they were 97 per cent positive I DIDNT have MS… how wrong they were…x
Hiya Hun, Thank you for the reply I’ve been hrough the denial phase and why me? Well why not me? And the mixed emotions. I’ve had a further two relapses this year so that totals four now altogether.
Hi Becky Welcome although I’m sure you’d rather not be here. Feel free to go on that is what we are here for - to give you support. I have gone on and on myself - often! You had a long frustrating road to diagnosis - doctors can be a different breed! You mention relapses - are you on DMDs? Hugs Min xx
Hi Hun, I’m not no the only drugs I’m taking is modafinil for the fatique and Gabapentin for night time. I think it’s something I need to consider now as I’ve been avoiding it for long enough. I’ve got an appointment to see my neurologist in jan so will have a chat to him then about it as this year hasn’t been very good for me health wise.
Hello and Welcome Becky, Sorry to hear you’ve had a long road to get where you are now. At least you are now being treated and are coping well with it. It is difficult to come to terms with but you will eventually. Take care.
Janet
x
Hi Becky and welcome. My advice is to get on a disease modifying drug ASAP. There is a lot of evidence to suggest the sooner you start the better. progression is slowed or checked and relapses are reduced in intensity and frequency. I would try to bring your Neuro app’t sooner if I were you. Thats my five pennyworth!! R
Welcome Becky,
Unfortunately your posting reflects the experiences of so many of us. Its so unfair as you could have been getting help so much earlier. As you say you have mobility problems and your husband helps you have you applied for DLA? You can also get a Blue Badge so you can park nearer to shops. Have they discussed Disease Modifying Drugs with you?
If you have any questions this is a great site to ask people.
BW, Mary
Hi Becky - I agree with Andrew DMDs ASAP. Have a look on ms decisions for information about the best one that might suit you. I would contact your MS nurse to speed things up Min xx
Hi Becky and welcome. I know it’s a bummer getting the dx as it sort of rubber stamps what most of us already know and it seems so final. I don’t know where you are in the country but I have found my local branch of the ms society invaluable. It’s good to talk to those who know how I’m feeling. The people there are very positive and in a way have reduced my fear factor. I don’t know if that makes sense to you, but my overall emotions were of total terror. You don’t say how old your kids are, I have 2 aged nearly 9 and 10 and they have also pulled me along! Feel free to go on when ever you wish! Hlth, Chis
Aww thanks for the replies hunnies… I’ve got two kids ages 5 and 9 and I also work part time too and it can sometimes be a real struggle especially if I’m having a bad day and I’ve got to go work or I get my backside kicked. I looked into applying for DLA and basically I don’t qualify because I’m able bodied. The more time i take off sick at work the more headache I get and eventually I will loose my job that I’ve been in for 10 years. I’ve had huge arguments with work because they said “well you look ok?” even though I had pages and pages of notes from my GP, MS nurse and my consultant to say I have MS. And I think your right about the DMD and I need to do something about it ASAP.
Hi regarding your employment you could always speak to someone at disability law service who are in partnership with the MS Society. Just a thought xx