I am currently being assessed for MS. It’s all happened so quickly and I’m feeling confused and quite distressed.
I’m now 37. About 4 years ago, I had a strange thing where my legs started tingling, and it went on for about 6-8 weeks. I did go to the doctor, but seemed to think it was back related, referred me to a physio who didn’t really think a problem, gave me some stretches to do and that was it. I did the stretches a few times, but the tingling eventually subsided by itself, and thought no more about it.
Then a little over 4 weeks ago, I got tingling in one foot. I had twisted that ankle a couple of weeks previously, so I went to the doctor just to check all was well. She thought it was just the nerves being sensitive to the blood/bruising in the foot. The next day, the other foot started and then over a few days it spread up to my waist. 10 days later I went back the doctor. Got referred straight away to hospital. They did some bloods and arranged an MRI. MRI done less than a week later, but this point my walking/balance was going, plus other things, sensitivity to touch, no heat sensation in legs. 2 days after MRI back in for results, they did a lumbar puncture, arranged a brain MRI. 5 days later, MRI done, now struggling to walk and toilet function poor. MRI’s showed a lesion on spine and two on brain. Saw neuro yesterday. There was a positive for an infection in ONE test. But there is no evidence from anywhere else and I’ve not been ill or had symptoms. So I need more tests to rule out infection as the cause, so had more bloods, am being booked in for another LP, and I’ve got a VEP next week.
Then I see her again in about 4 weeks once all results fully back.
She basically told me the cause of my symptoms is either an infection which will be treated with antibiotics, or MS. I said could it be something else – she said no. And she hadn’t seemed convinced it was going to be an infection.
So in 4 weeks I’ve gone from a normal active person to a possible MS diagnosis. Today I’m really struggling as I’m having trouble emptying my bladder – I really need to go but it just won’t come out. It’s getting quite distressing. I am at work, and keep staggering to the toilet and bladder hurting, but can’t go. So come back to desk, half hour later try again. Have actually just managed to go a bit.
Sorry for long post. I don’t want to tell people as I don’t know yet and still getting head round the possibility, but also I just need to get it out. Thought you’d probably understand here.