Hi, im new to these forums -actually this is my first ever post!!
I got diagnosed in july 2011 with MS. In 2008 i got diagnosed with demylination but when the numbness returned in 2010 it was more agressive. I'd collapse in the street, fall down stairs, bump into anything (i'd pinball down a corridoor bumping from wall to wall), i couldnt even grab anything as i would drop it, i was covered in cuts, bruises and scars especially on my legs. All of this lasted till august 2011 which was when i was put on Medrone for 5 days -i cant believe how much its changed my life!! my balance had improved like it was before i got the demylination. my doctors told me to take a d3 vitamin tablet -i take 4 a day in the winter and 3 a day in the summer. Before i took the Medrone my life was hell. i had no life, i'd stay at home and wouldnt go out. going to work was horrible -how can you explain the numbness and bad balance to people? i had good and bad days like some days the numbness wouldnt be as bad and i'd be able to do things and on the bad days i wouldnt be able to get out of bed cos if i did i'd fall as soon as i got out of bed. its horrible. i had to suffer for 10 months before they put me on Medrone which im seriously not happy about. even for my birthday i couldnt do anything!!
I had to tell my manager in work (which i didnt want to do) because its embarrassing. i told my manager that i need to go the toilet as soon as i need it otherwise it'll give me a UTI which people with MS are prone to have as the bladder doesnt empty properly. I also had to explain to my manager that the nerves and muscles dont work together in a way. before i was diagnosed last year id had 6 water UTI's in 2 months!! when i have a UTI i relapse and my bad balance and sometimes numbness returns :(
So somethng happened in work the other day (MS related) and as of now im so down and crying all the time, i really dont know what to do. Ive got another UTI which now has me on strong antibiotics for 7 days. so today i rang the MS nurses up to see if they could give me any advice but they havent gotten back in touch with me as of now, ive booked a dr's appointment for monday to talk about going on anti-biotics for 3 months to stop me getting UTI's. im going to make an appointment with neurosupport so they can give me advice on how to deal with work.
Since i got told i had MS ive changed my life -how i eat, i exercise more -i even bought a wii fit plus which has helped alot! ive changed everything.
I have only told 5 people that i have it, i cant tell anyone or talk about it as i just cry. even typing this im crying.
Im a very positive person, i dont even think i have MS until something happens that reminds me that i have it like a UTI. when im down (like i am now) i have all these horrible thoughts like i'll never be able to have kids or a relationship cos no one is gonna wanna be with anyone who's like this and i know this isnt the way to think. i never think like that until im down due to my MS. i hate being like this, i dont like being negative or being around negative people.
I really don't know what to do anymore, im really upset!