Aloha people, I hope you’re all doing well
I have had a bout of optic neuritis for about 2 months now, and I was just wondering if anyone else has had/has it? How did/are you coping? And how long til it goes away for a while?
Thanks!
Dave
Aloha people, I hope you’re all doing well
I have had a bout of optic neuritis for about 2 months now, and I was just wondering if anyone else has had/has it? How did/are you coping? And how long til it goes away for a while?
Thanks!
Dave
Hi Dave,
Sorry things are a pain at the moment for you, but I have not had ON so cant answer your question, but am sure someone will be along soon who can.
Hang in there
Pam x
Hi Pam, I hope you’re ok?
Thankyou It’s not causing me huge amounts of problems, just an annoyance really! x
Sorry to hear you have ON Dave. It’s not as common in PPMS as it is in RRMS…so you might want to post on EL and ask the RRMSers. I do know that it does clear up eventually but can take a while. Really hoping yours clears up soon. As if you haven’t got enough to cope with! Pat xx
Hi Dave Experienced this way back in 2002. In left eye. Lasted 6 to 8 weeks from memory. Since then I have had no eye problems whatsoever. All eye tests have been good - I’ve never needed specs. BL
Hi Dave, Really hope things improve soon. Important that you rest as much as you can. Nina x
Hi Dave
Thanks, I feel better now the latest infection has cleared. Its amazing how it can wake up your symptoms affecting your whole being.
Strange, strange thing this ms, take care.
Pam x
I find I get it when I eat dates. Odd, I know. Assume it 's sugar related, for me anyway. Heather
Hi Dave
Sorry to hear about this, and hope it clears up for your soon. From what I’ve read and heard ON is pretty rare in PPMS, but very common in RRMS. Maybe folk on that board might be more help. Only advice I can give is stay positive. Cheers, CP
Hello Dave, the opthalmologist I’ve been seeing says my optic nerve seems fine even though I have some of the symptoms. He seems quite laid back about it so I am as well even though I prefer not to drive in the dark at the end of the day. It’s much better in the morning obviously. I now try to restrict my lap top use and have bought a TV with a very large screen. Anyway I seem to be managing the situation ok even though it’s one pain amongst many! Hope you get some improvement soon, best wishes, Steve.
Hi Dave
I’ve also never had ON but I have double and blurred vision when I’m tired, worse when I’ve had my amitriptyline. I saw my optician and he actually suspected ms before I was diagnosed because my eyes weren’t working together. He made me some indoor glasses, they’re varifocals with three levels for reading, compute and tv but more importantly he put prisms in each level forcing my eyes to work together and give my brain a chance of registering what I was seeing.
They’ve been a godsend, it still blurs when I’m tired, mentioned this to the Neuro who suggested prisms not knowing I had them. What I’m suggesting is that you see an optician if you haven’t, but get a good one. It costs a bit more but has really changed my life. It probably won’t help while you’ve got ON but something to consider afterwards. I found audio books a wonderful escape when my vision was poor, if you’re in the UK you can download them from your library for free.
Take care
Cath xx
Hey guys, thanks for all the info, it means alot, it’s not a massive hindrence on my life, it does however, affect my aiming on shooting games on the Xbox, worse than falling on a sword!
Dave