I wonder if anyone could help. As a few may have seen from my other posts I am stuck between a rock and a hard place with a diagnosis of CIS no MS nurse a GP that says they are unable to help and a neurologist who never replies to calls. So i thought maybe I should email/write to him so there is a trail and therefore more likely to get a response. Do you think this may work?
My difficulty is explaining my symptoms and wondered if anyone is able to help write it English haha.
So I have intermittent weakness in my left arm which stops me gripping and carrying objects.
I have severe pain in my fingertips which feel like I have slammed my fingers in a door.
I confuse words and/or forget them completely. They are on the tip of my tongue but they won’t come out. As I am a teacher (this can be problematic
I am struggling to use my hands as well as I was, writing, texting and general little movements seem very tricky at times. Again this is intermittent
I am beyond exhausted
An odd one I get hiccups almost every time I eat or drink. Could this be a related symptom?
these are all fairly new symptoms and completely separate from my CIS symptoms which was mainly ON
lastly approx 10yrs ago I had a huge problem with pain I had all sorts of treatment and absolutely nothing worked to relieve it I ended up on fairly strong medication I’m unsure why it has never occurred to me before that this could be related, I have therefore never mentioned this to my neurologist. Do you think this would be a good idea to add into the letter?
I am not worried wether my diagnosis stays as CIS or something else but would like to be taken out of the limbo where neither party will help so access to an MS nurse or similar would be a great start
If I wrote a letter like this explaining my symptoms is he likely to understand? If not can anyone think of any better way of wording it? I feel like I have to be more proactive in getting some help now so I’m very greatful of all your help and insight