Hello so firstly i m from a small country in europe(slovenia) so not really an UK resident, but our country doesnt really have big support around MS at least not forum wise.
So about me i m 33years old i have ms for 11years already and lately got harder living with it. I just dont want to live with MS anymore, constant pain in neck area, trouble walking(weak muscle feeling,muscle spasms), Depression,social anxiety,low self-esteem, always tired. So last 2 weeks my depression got worse and i m in stage that i dont care if i die, my spasms dont go away. I do have a therapist but she only talks to me once each 2 months and writes me pils for depression. And psychotherapist are expensive in our country and cant really get them trough our health care. And i live atm on social welfare which is around 314e and one visit per therapist would be 20-30e. And yes i live with my parents which are one of my biggest triggers from my childhood and problems accomplished with my depression and ms didnt help with depression. I m seriously of thinking of killing myself and just be over with the constant pain because of MS. All my life was from one stressfull event to another and i just cant do it anymore. Dont even have any partner the friends i have they do listen but most dont live near me so we barely see each other. And in my ms society people just dont want to talk about bad stuff, they are all cherfull all the time and just mostly ignore bad things.I lost all hope for me getting a girlfriend,job,living alone,traveling, i just dont want to burden anyone anymore and just die.
forgive me for speaking the obvious but there is no coming back from a successful attempt and an un successful attempt can land you with more problems.
It is very unfortunate that you are socially isolated from your friends.
33 is no age to be considering death and yours will upset the lovely people who use this forum.
I do not know anyone from slovenia, the nearest contact I have is the lovely people who have a Polish shop near my house.
I know that I am extremely lucky to have our National Health Service and if i ruled the world, everyone would have a similar system.
your parents will be devastated if you die so please don’t do anything rash.
Just know that I have read your post and my heart goes out to you.
I feel very sorry for you, it sounds like you are really struggling, I wish that there were things I could do or say to help make you feel better. I will also send a virtual hug and hope that your situation and circumstances can improve very soon.
Hi Miska, Oh love my heart goes out to you, so young to be coping with all of this. We’re very lucky here in the UK, with the NHS and everything we can get help wise, honestly its just not fare that people can’t get the same help as we do. If you take your own life your parents will be devastated, the rest of your family and your friends, so please, please don’t do that, instead when you’re feeling lonely, upset and need to talk come on here, we’re always here to listen, give help, advice, hopefully make you laugh, we’re here for you, we’re here for each other, so you are so NOT on your own. Just and idea as far as physio goes, if you have access on youtube look out for phyio exercises for MS, there’s loads on there, I do some myself, also for the pain I don’t take any meds because they don’t work for me, but I use either heat or cold pads and place them in areas that are most affected, I bought this off the internet, Ebay I think. Sometimes the things they can offer us with MS don’t always have the desired affect, of have bad side affects, so we have to try things for ourselves, good luck to you love and don’t forget we’re always here if you need us,
I’m one of the admins on our community forum and wanted to get in touch about your recent post. It sounds like you are having a really difficult time, and we can hear how desperate you are feeling. If you are having thoughts of suicide, please call your local emergency number or go to your local hospital emergency room right away.
If you need to speak to someone urgently today, the Samaritans are available 24 hours a day, 365 days of the year, and provide confidential emotional support for people experiencing suicidal feelings. Their telephone number is 116 123. You can email the Samaritans at jo@samaritans.org.
From Monday – Friday, our MS Helpline is also there for you. The team can provide information and emotional support, and can chat things through with you. You can contact them on 0808 800 8000 or email helpline@mssociety.org.uk.
Hello so i read all of your lovely messages and it made me feel a bit better thank you, and i really hope it will get better. And no i never thought about sites that are tailored to disabled people,will check that aswell. And will talk to my doctors about getting some more help about everything that bothers me at the moment.
Hello Miska, I’m 35 and have had ms about 10 years. I’m now quite disabled and struggling with tiredness and everything feels so difficult.
i have read a lot of posts from unhappy people and thought a Zoom call might be beneficial for me and others. Let me know if you are interested. Thanks.