It’s my first time on here so really I’m trying to gather as much information as I can so thought I’d get a thread to try and narrow down what I’m reading.
My sister in law has had tingling and numbness in her legs/feet for a while now. Initially she had tests done and they told her she had a mass of fluid on her spine near the top, she had a biopsy done and the results came back today and they’ve told her she has MS.
The doctor has said that It’s relapsing MS? I’ve Googled the term so half understand it but I’m looking for more help really. We don’t know anyone with MS so literally everything we read will be online.
I’ve read that everyone is different and that It’s difficult to say what’s to come as people respond differently but surely there must be some similarities? Ultimately I want to know how bad it could possibly get? She has no other symptoms other than tingling sensation and some numbness in her legs/feet, she has no pain.
The main part of this MS Society site is a great place to start for good, reliable information about the condition and treatments and a host of other things, as is the MS Trust site. There’s a lot of wild and wacky stuff out there on the Net, so sensible, reliable sources of info are very important.
You are spot on with the notion that each instance of MS can vary vastly. There is a lot of quality info on the MS society site. Here on the forum there are many people with a wealth of experience and empathy, so it is pretty good for real world info. I had RRMS for 16 years with a range of symptoms and severities. In my case I would have an “attack” (a new or different symptom) which could be pretty scary. I tended to recover to 80-90% of my previous normal. I then moved on to SPMS (secondary progressive) with no major attacks but a very slow decline. In my opinion your sister in law should develop a support team of professionals (Neurologist/GP/MS nurse) family and friends. I also recommend that as she needs to become an expert on her body she needs to become consciously aware of how she is feeling.
It is easy to be overwhelmed by this vast new situation be upset and angry. All perfectly reasonable but wont help much.
I shall stop wittering but it sounds like you are already part of her team. Nice one.
Mick
Hi Dan,
I have only recently been diagnosed too and only just came on line to understand whats to come as like your sister in law I dont know anyone else. I have the
relapsing MS also!
It all comes as a bit of a shock doesnt it.
What the neurologist has offered me is a 6 monthly infusion which I am to start next month.
Hopefully someone wiil come online and help us to understand more.
Wishing you both well.
Julie