Good morning all,
I have recently been diagnosed with MS, for sure, Spinal lesions T10/11, Brain lesions T2 and Oligoclonal bands from the Lumbar Punch, still not sure which variant of the disease I have, raised the question with my MS nurse, still unsure. I struggled along for a couple of years, difficulty walking, burning thighs, lower back numbness, balance issues, bowl and bladder urgency, where my main problems, but I managed to survive and keep working. About three months ago, my condition worsened significantly, which has been described as an aggressive re-lapse, this issue was all I had before, but the addition of numbness from my toes to my waist, making walking almost impossible! Had a fast assessment at an open MS clinic, put on Steroids straight away before I left, also was given a EDSS score of 6.5. The steroids have taken the numbness away, but left the symptoms intact. it has been a whirl wind now, still all new to me, have no idea, what my MS is, other than the problems it presents me with, it has moved on quickly now, seen an incontinence specialist, got physio booked, got a chest xray booked and more bloods coming and I am now going on Ocrevus in the new year.
I think the reason for posting is, this is all so new to me, and has moved so fast in the last twelve weeks, I have no idea what’s to come and getting tangible advice is proving difficult. Any advice on the prospects is most welcome.