Hello people greetings

Hi everyone
Does anybody know why people act strange when you drop in a conversation you have m.s
Everyone i neet and say would you like to go for a coffee and you mention m.s their face changes or dropps to something like shrek ???
Has anyone else going through this or is it just me .
X

I think we all have a reaction like this somewhere along the way - and the 101 weird questions/assumptions that follow (if they stick around).

Some of the reactions are so daft the mind boggles; one of the best Iā€™ve had is someone doing the face drop, stammering ā€œIā€™m so sorry, so sorryā€, then trying to manhandle me into a chair whilst waving people aside dramatically.

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My favourite was when I shared the news with a very young, very sweet colleague. She looked aghast and said, ā€˜My neighbour had that. She died.ā€™

I had to excuse myself and make for the Ladies because I didnā€™t want to upset the child by bursting out laughing in front of her. It was the first genuine from-the-heart laugh I had enjoyed for a while, so I was very grateful to her!

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Thats funny took me a while to type this lol :laughing:

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Lol yep with me because i look very young for 53 and my top half is always exercised and in shape they think im on the motability scooter for a laugh,
And when they ask i say im disabled they say you should start exercising then you wouldnā€™t be in that ???

Ir when i park in the car and a karen turns up this us disabled only i tell them i am and have to reveal constantly on a daily basis that i am in fact disabled :upside_down_face:
Strange world we live in lol

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Hello @Garymanchester80s
In the early years of the disease, I found mentioning it was a bit of a conversation killer, I never felt comfortable mentioning it again until asked why I used walking aids.:crutch::crutch:

The problem I have now is when they ask I become too much of a chatterbox, itā€™s like opening a flood gate, I just canā€™t help myself from laying out all the health problems affecting me. :robot:
JP

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Iā€™m totally sure itā€™s not just you and I must admit Iā€™m guilty of something similar. My wife and I were out today at the local RSPB reserve- me on my mobility scooter. We met a slightly older couple and the guy was using a Rollator. He stopped to ask me about my scooter. It was hard to understand him because as he explained he was diagnosed some 20 years ago with MND and advised that he probably had only 5 years to live.

For a while I was stunned, didnā€™t know what to feel or what to say. I tried to have a normal conversation but with him having trouble speaking and me lost for words and confused about what to feel or say, it wasnā€™t the easiest conversation Iā€™ve had. Apparently they go to the reserve quite often and we said our goodbyes, wished each other well and looked forward to meeting at the reserve again. I left with total admiration for the guy and his wife !

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Some of my favourites -

They can do so much for it nowadays

They can stop it in its tracks now

Itā€™s not life threatening

But this is the weirdest -

The good thing about that is that youā€™ll never be depressed, when my husband was mayor we met lots of people with MS and they were all bright and cheerful.

:grinning:

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That last one is priceless! Thank you! :rofl:

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