Hi everyone
Does anybody know why people act strange when you drop in a conversation you have m.s
Everyone i neet and say would you like to go for a coffee and you mention m.s their face changes or dropps to something like shrek ???
Has anyone else going through this or is it just me .
X
I think we all have a reaction like this somewhere along the way - and the 101 weird questions/assumptions that follow (if they stick around).
Some of the reactions are so daft the mind boggles; one of the best Iāve had is someone doing the face drop, stammering āIām so sorry, so sorryā, then trying to manhandle me into a chair whilst waving people aside dramatically.
My favourite was when I shared the news with a very young, very sweet colleague. She looked aghast and said, āMy neighbour had that. She died.ā
I had to excuse myself and make for the Ladies because I didnāt want to upset the child by bursting out laughing in front of her. It was the first genuine from-the-heart laugh I had enjoyed for a while, so I was very grateful to her!
Thats funny took me a while to type this lol
Lol yep with me because i look very young for 53 and my top half is always exercised and in shape they think im on the motability scooter for a laugh,
And when they ask i say im disabled they say you should start exercising then you wouldnāt be in that ???
Ir when i park in the car and a karen turns up this us disabled only i tell them i am and have to reveal constantly on a daily basis that i am in fact disabled
Strange world we live in lol
Hello @Garymanchester80s
In the early years of the disease, I found mentioning it was a bit of a conversation killer, I never felt comfortable mentioning it again until asked why I used walking aids.
The problem I have now is when they ask I become too much of a chatterbox, itās like opening a flood gate, I just canāt help myself from laying out all the health problems affecting me.
JP
Iām totally sure itās not just you and I must admit Iām guilty of something similar. My wife and I were out today at the local RSPB reserve- me on my mobility scooter. We met a slightly older couple and the guy was using a Rollator. He stopped to ask me about my scooter. It was hard to understand him because as he explained he was diagnosed some 20 years ago with MND and advised that he probably had only 5 years to live.
For a while I was stunned, didnāt know what to feel or what to say. I tried to have a normal conversation but with him having trouble speaking and me lost for words and confused about what to feel or say, it wasnāt the easiest conversation Iāve had. Apparently they go to the reserve quite often and we said our goodbyes, wished each other well and looked forward to meeting at the reserve again. I left with total admiration for the guy and his wife !
Some of my favourites -
They can do so much for it nowadays
They can stop it in its tracks now
Itās not life threatening
But this is the weirdest -
The good thing about that is that youāll never be depressed, when my husband was mayor we met lots of people with MS and they were all bright and cheerful.
That last one is priceless! Thank you!