I am new here and my name online is Cam.
In early 2014 i had woken with one side of my body numb and thinking i had slept funny on it i left it and after a few days i then was persuaded to do to see the GP. He though it was a trapped nerve and perscripted something and left me to it. The numbness never really went i just sort of learnt to cope with it and being busy never had a chance to go back to the GP. In October i was hit by crippling muscle spasms the pain would be so sudden and severe i would wake in agony and pass out with the pain. This does still happen now but less painful and following a diagnosis of Fibromyalgia and Arthritus i had a MRI scan to see if my spine was affected due to earlier and well managed damage to 2 disks. It took some time to get this diagnosis and get the MRI scans arranged.
At this point end of March 2015 i ended up on a bit of a rollercoaster which started with the hospital calling at 9am on a sunday morning asking me to come in for additional MRI scans and after spending over 2 and a half hours in the machine and a meeting with a nuro a week later i had a diagnosis of MS. (No lumbar puncture) There was a 4MM lesion on my brain along with more on brain and multiple on spine. Looking at my medical history i have probably had MS for over 6 years but to be honest joining the dots i think this hit over 15 years ago.
The numbness faded quite a bit by Sept 2015 and my rumatologist was convinced it was carpel tunnel so provided me with a hand brace to sleep with and next morning i am now very numb again more or less back to square one not sure if it was the brace or the MS but stopped using the brace. Don’t seem to have any change now in November and have recently developed very cold hand and foot (on numb side). Am waiting nerve testing to see if there is any damage. I am also being hit by waves of fatigue and sometimes just have to stop and go back to bed (not always convenient).
The Nuro was unable to decide what type of MS i have and i have recently had more MRI scans done and back to see the Nuro in 2 weeks (aprox 6 months from diagnosis).
I have met a couple of people who seam so to have similar symptoms as myself which has been good.
I have appointments for fatigue management course.
I have a MS nurse but there not really interested unless i have another relapse.
Currently on NO medication as have reactions to quite a few of them.
Any experiances you can share appreciated, apologies spelling along with MS i have some issues with writing what i want to say almost like i have developed dyslexia.
Any useful questions for Nuro also appreciated.