no diagnosis

hi,

im new to the site, but really nead some advice.

For the last year I havre had numerous problems. It started with pain in my left arm, elbow and collarbone and progressed to pins & needles in my hand, numb and blue fingers and shooting pains down my arm. My doctor thought it was a trapped nerve and said to wait 3 months and should get better. It didnt and so i was refered to a neurologist. I had a cervical MRI, which was clear and so my Gp basically said that there was no more help available and I would just have to live with the pain. I went away and made an appointment with a new GP and my symptoms were gettong worse esp after a full day at work( i work in an office) . She refered me to a vascular consultant because of the pain and blueness of my fingers.I was given a Ct scan, it showed a high clavicle on my left side but no blockage. By the time I saw the consultant again i had developed some strange new symptoms, trouble with speech, remembering words and numbers, also trouble swallowing and burning feet. My consultant was so worried that he urgently refered me back to neurology. I was given a brief examination and told that there was nothing wrong. I was sent for EMg and nerve conductivity tests. The EMG was normal and the nerve test showed no local damage in my arm and so was positive for maybe MS. I returned to the hospital and was told that needed a brain MRI. This again was clear and so the neurologist said that she coulndt give a diagnosis, and that basically had to wait and see whether symptoms got worse. Since thjis i have developed pain in my mid back ( is under where bra strap sits) which runs down either side to my lower back. The pain then goes down either hip and to my knees. It means that I have trouble walking and have very bad pains when i do. I also cant bend and have to hold my trouser leg to lift my leg up so i can put on socks or shoes. I am trying to continue with working full time but am so tired all the time. I am now waiting for a referal to the local pain clinic to see if better meds ( i am taking co codamol and amitryptyline at the moment) please could anyone offer some advice, do you think it likely I could be developinfg MS? I have read that it takes some peiople years to be diagnosed and conflicting information on the importtance of brain MRI.

Hello, and welcome to the site

MS can be a difficult condition to diagnose because there is no definitive test for it, plus the tests that are used (MRI, LP, VEPs, etc) can be clear in a small percentage of people who definitely have MS.

The one test that is never normal in someone with active MS is the clinical exam (assuming it’s done correctly and thoroughly of course!). The problem with this is that abnormalities in the clinical exam can point to lots of different conditions, so the neuro needs more information to be able to work out exactly what’s going on. Without any abnormalities in the exam, the neuro can only conclude that the problem isn’t neurological and discharge the patient, or adopt a “wait and see” approach, which I guess is where you are at the moment :frowning:

Could you be developing MS? I guess it’s possible, but the pain you describe wouldn’t be a typical presentation, I don’t think. Have you looked into conditions like Complex Regional Pain Syndrome? I don’t know a lot about it, but it might be possible?

I can’t imagine that cocodamol and amitriptyline are doing a whole lot for your pain :frowning: Can your GP not let you try a different neuropathic painkiller (e.g. pregabalin or gabapentin) rather than wait for the Pain Clinic appointment to come through?

I hope you get some better meds and some answers very soon.

Karen x

Thanks for your reply. Im seeing my doctor again on monday so hoping for some further help with everything before going to the pain clinic.