Having an illnes like MS drags us all down and the not knowing for sure.I have many bad days and have steadily got worse over the past three years or so.You are entitled to help with aides and meds while you wait for a DX.So do not sit and suffer or struggle in silence.
Many of us have shed many many tears and even got angry at ourselves and the world,belive me you are not alone and we all feel your pain and sadness.
I to have a child,I used to be so fit and run around with the children,play football,get all the children up and playing games.Now I struggle to even get to the local park and all I can do is watch.I wish I was ME again.
I laugh with my child over the silly things I cannot control.I laugh at myself and my child joins in.Inside we maybe feeling hurt and low but as long as we can smile for out children even when it hurts then they are happy.Children do not need expensive gifts but the love and attention from parents and family.Your child understands your not well and that you are trying he maybe 6 but these days children are knowledable.
I took walk with crutches,if I didnt have them I would be trapped at home going crazy.I to fall over and if I do I cannot get back up.I often imagine getting stuck on my back like a turtle unable to get back up with arms n legs flaying.
Do not worry about spelling or trying to write the jumbled letters,I do not.I am what I am.Only an ignorant person would make a verbal or written negative comment.I do not use spell check as I cannot reconise the word I am trying to type from the list.
Yes our lives have changed and yes each day we have to learn new ways of doing things and yes we do struggle with day to day tasks and many tears we cry.
But once you get a DX then its time for treatment that can realy help us,get the aides we need at home and outdoors,give us the right tools and we CAN have a good quality of life,I am afraid to say it all takes time,the waiting game is terrible.
Life can be a B**** but life is what you make it to.Keep fighting back,we have no choice of giving up we have to much to live for.
I have my down days and they are terrible.BUT then I get those days were I kick my self into touch.
Mike you are never alone when you have your extended family on this forum.