Hi, I went to my first neurologist appointment and he diagnosed me with FND. I have had a clear mri about 3 months ago and he didn’t feel it necessary to do further tests. No mention of ms. He wrote the website for FND and handed it to me and said he would write to my gp with diagnosis. No word of treatment or a way forward.
My symptoms are really bad and I’m now stuck to research and start over again. I’d never heard of this condition as it’s so similar to ms, but I’m now concerned about what I do now. Feeling drained
neurosymptoms.org? That’s an excellent and informative site, I think, and a great resource for people in neurological trouble who don’t have the kind of disease markers that point to a specific disease process (like MS) at work. I haven’t looked for a while, but in my memory it is particularly good at explaining what FND is and isn’t, and reassuring on the fact that it is a ral thing and absolutely not ‘all in the head’.
I think your best course is to take some time to digest the info and give yourself time to come to terms. I hope that your condition improves.
1 Like
There are special rehab places for FND. when i saw a neuro for a second opinion he said i had FND. I told my neuro who laughed and said i would ask you for your money back lol, as you have too many positive tests for neurolgoical issues. At the time i didnt care what it was. I did research and there was a rehab in bristol which i would have gone too if the diagnosis had not been a shoddy lazy one, considering the bloke hadnt even read my notes lol.
they do this though let your read the research and talk to your GP ABOUT where you go from there. I think there are some good support groups for it. xxxx
at least its not MS. which is a blessing. xx
1 Like