Really really sorry to hear you are feeling ignored when you are experiencing symptoms!
I really relate to your experience so much and know you must be facing a lot of stress and worry.
Some people have success down private route but I will let you know my experience as, if you go down that route and it isn’t what you expect then know you are not alone. Sorry in advance for the incoming essay.
I had years of NHS telling me my symptoms were anxiety, depression or vitamins (iron). They convinced me at points. One bad time years ago, I kept finding myself on MS sites with related symptoms… went yet again to my NHS gp but this time felt brave enough to directly ask for neurology referral. They said they couldn’t on NHS but they had a private neurologist friend they could refer me to. I took the option and used savings.
That person made me feel like an idiot. He told me clearly I’d been on google and worried myself. He refused any further tests or scans. Wrote back to gp to say that I had just worried myself. It stopped me seeking help until last year.
I don’t say this to worry you, I say this to let you know if you don’t get answers from private to keep going! Be persistent if you know something is wrong. Regardless of what the diagnosis is, it is right that you get the answers and help you deserve!!
I am now getting the help I need and have been offered treatment. My GP was still hesitant to refer me this time around and said was likely vitamins. In the end I actually managed to get my NHS referral via opticians which I really hadn’t expected and didn’t know was possible!! I had to specifically ask for an eye health check as was experiencing problems and not a standard eye test which I already had twice in the few months leading up. They sent me to an ophthalmologist at the hospital who then passed me to neurology. I got seen and in the system and the rest is history.
Wishing you all the best in getting answers soon and the help you need!