Well after 8 months I have some kind of dignosis…
Back in Feb I had an ‘episode’ I woke up with complete numbness down right hand side of my body and my mobility was seriously affected, I also had a constant weird headache like feeling…hard to explain, feelings of being constantly confused?! Unable to focus, neausea, pressure, vertigo and extream fatigue.
I was given an MRI which came back with clear signs of demyelination. After being shuffled around hospitals and departments and an eye test I finally got to see the consultant Neuro last week and this was his letter:
Diagnosis 1. Clinically Isolated Syndrome (first episode of demyelination) 2. Chronic Migraine. 3. Previous Vestibular Neronitis.
He then goes on to explain about my history…that my previous episodes of vertigo being consistant with vestibular neronitis rather than being of central origin
He also acknowledges that I “have been trouble with fatigue for a long time and the possibility of Chronic Fatigue Syndrome has been raised in the past”
“that on examination my knee reflexes are brisk with increased tone in both legs and MRI revealed a large area of high signal in the left frontal lobe, there were one or two other small areas of inflamation. She has had a single episode of neuro inflamation and we would term this CIS though a better term would be single sclerosis. Due to her abnormal MRi theres is an approximate 60-70% chance of a further episode within 20 years which would then indicate a diagnosis of MS”
He then recommends my Dr to put me on preventative meds for migraines.
OK SO HERES MY QUESTIONS!!!
How can there be a few areas of inflamation but its still being called ‘singular’ ???
Why are my several previous episodes of being seriously ill (I had to be taken out of full time school because of one) being treated as seperate problems??? Surely they could have been the first attacks? The only difference was Ive never had the visible symptoms before (numbess etc)
Could this ‘large area of inflamation’ have been causing these problems for years and only just recently have caused the numbness?