Hoping some of you lovely people can help me out with my confusion about symptoms.
I have seen a neurologist and had an MRI, which showed a prominent lesion near my cerebellum. The neurologist has diagnosed clinically isolated syndrome, as there isn’t evidence that I’ve had more than one attack over time. I’ll be back to see him towards the end of June to discuss the scan results, and he has also ordered blood tests and an LP and another scan in 6 months to see if there are any changes.
The reason for my post is that I seem to have developed a new symptom within the last 3 weeks, which wasn’t there at initial onset.
3 months ago I had a bad fall, balance problems, double vision, numbness in my left cheek and tongue and cold tingles on my right ankle. These symptoms have been very slowly improving, although almost all of them all still there.
About 3 weeks ago I noticed that I had a loss of sensation on the top of my left foot and going up the front of my ankle. There are muscle twitches in my lower leg and foot too, making it difficult to sleep at night.
My understanding of CIS was a one off attack/event, so I’m confused why I have a new symptom that wasn’t there at the beginning. Should I contact the neurologist about it? Or should I just leave it until my appointment in June and discuss it with him then? I know there’s probably nothing he can do at this point anyway as he has ordered all the tests, it’s just a case of waiting for them now.
Sorry for the long post. It’s been very distressing because even though progress has been slow, I am better than what I was even a month ago, then this new thing has appeared. Worried what else will happen now, which isn’t helping with the anxiety and sleep problems
Thank you for reading x