Back in Feb 13 I had an episode in inflamation in left frontal lobe which caused my bodies RIGHT side to go totally numb and very heavy for 8 weeks in May 13 I was given the diagnosis of Clinically Isolated Syndrome. Which the neuro discribed to me basically as a singular sclerosis, and that I had an increased risk of it now happening again in which case I would be diagnosed with MS.
Since then ive had continuing problems with fatigue and just generally feeling unwell so again last month (May 14) I was given another MRI after a bout of really bad fatigue to see what was going on… typically a few weeks later (31st May) I woke up feeling like id pulled a muscle in my LEFT arm, I thought nothing of it but its now been 11 days, ive tried both rest and exercising it along with a tubi grip and icepacks it still wasnt getting better plus my leg is also very wobbly and my energy has seriously slumped. My arm is shaky, weak and my muscles feel tight and sore (as if ive over done it with exercise if you know what I mean?) plus Im getting sharp pains like being stabbed with pins in my shoulder and spine. Menatlly I feel shattered all the time and very disorientated / ‘out of it’
Ive had a urine test and theres no signs of infection so I contacted my MS case nurse but she said the last MRI was clear so the neuro doesnt see it as urgent! I explained this has come on since the last MRI and they finally agreed to let me go to the clinic next week but ive been made to feel like im just imagining this??!! She even said ‘oh if you change your mind and feel you dont need the appointment please let us know’ ?!?
Sorry but am I going mad?? Or does anyone else think these new problems are not normal???