Morning all, I just wanted to get some help/advice. I’ve recently been diagnosed with CIS, unfortunately I haven’t had the best understanding of what it is and am getting really confused with are my symptoms related to this new diagnosis. I’m currently in hospital at the moment and am starting to feel its due to an episode I’m having. On a daily basis I experience dull aches/pain in my left leg that radiates to my tummy and back. Recently my symptoms have been worse which is what’s brought me into hospital. I’ve had electric shock feelings all over my body, a fuzzy dull ache near my groin, numbness in my left foot and pain in my hands and just under the ball of my foot. At first the doctors thought it was a gynae related issue but they’ve done a scan which has come back normal, has anyone experienced groin pain nerve issues? Im also experiencing lots of spinal pain, mainly at the bottom of my back but can radiate all over my spine. I do have a lesion on my spine, and am awaiting further MRIs soon, however due to COVID this hasn’t happened. Am I going through a episode right now? I’m due to see the neurologist today so I’m really hoping they can shine some light on why I’m feeling this way.
Hi, sorry to hear this has caused a hospital stay. How are things now?
Boudsx
Hi there, looking for a bit of advice really before i speak to my consultant next week. Back in January i lost the vision in the right of both my eyes, CT and MRI showed a legion on my brain, i had a LP which showed unmatched oligoclonal bands. I had another MRI 4 weeks later which showed improvement and another legion. I went to see a consultant who said it was CIS, hopefully a one off and to repeat the MRI in 4 months. My vision slowly returned to normal and so did life. At the beginning of April i had a really bad spell of dizziness and strange sensations, i phoned the MS nurse as told to by consultant, when they finally got back to me i went in for blood tests which all came back fine (not really sure of the point of them?), they spoke to the consultant who said to continue with MRI in 4 months (should have been around now) 2 weeks ago a similar thing happened and i could barely get out of bed for a couple of days because i just felt like i was falling along with these really strange sensations which i struggle to describe (like the feeling you get when you have butterflies in your stomach but going all down my right leg??) I phoned the MS nurse and left another message, no one got back to me so i rang my GP who tried to chase up, 1 week later MS nurse got back to me and said that my MRI wasn’t booked until middle of August!!! but he would speak to the consultant and try and get it brought forward. The hospital phoned this morning and i have a telephone appointment with the consultant. I don’t really know what to expect with this appointment, i don’t really know what to ask. I know coronavirus has caused problems with diagnosis and treatments, i don’t know about any treatments. I just feel generally scared and abandoned by the consultant but know i need to keep it together. I have thought maybe my hormones trigger things so went back in the pill, i worry that maybe the extra cup of coffee triggers it or i had one too many glasses of wine. Currently have a twitch under my eye which is driving me crazy and wonder if that is related! Just want answers but not sure to what questions! Sorry for the ramble 