Hi
Newbie here so doing the intro part! 53yr old female, diagnosed with RRMS 14yrs ago which has now progressed to SPMS. Gave up work 3yrs ago as became increasingly difficult. Menopause has impacted on MS symptoms tho HRT does help somewhat. I haven’t seen neuro in years and sadly my hospital no longer seems to have MS nurses so I now feel a bit abandoned and unsupported. That’s all folks I think! Don’t want to say too much more as it gets too depressing doesn’t it?!
Anyway, greetings ![]()
Hi there @c.roberts661
Sorry to hear you haven’t had much support from neurology.
Would you like more support? If you do then you could see your GP and ask them to write to neurology / rerefer you.
This forum is mostly really friendly and supportive, so hopefully that will help you.
Wishing you well.
Alison
Hi @c.roberts661 is there a way of getting registered with a hospital in your general area with a functioning MS Neurology service? Even if it means longer travel than your current one it would be well worth it.
I’ve had MS for around 19 year and now have SPMs. I was due to move from my old DMT to Mayzent/Siponimod which is supposed to have some impact on SPMs but, unfortunately, the medics picked up something in an ECG that made them nervous about me moving to Mayzent. Have you been considered for Mayzent ?