Hello all, i read the post on MS nurses and neuros not being very helpful and TOTALLY agreed with it. I get most of the answers i need from blummin’ (for want of a stronger word) Googling things and coming on here. I feel like I’m totally going it alone. I feel like it have to virtually beg to get help with things and i have to get to such a low point before things are taken seriously.
Wanted to know how often people see their Neurologist and how often they see their MS nurse and how long your MS nurse takes to get back to you if you call with a issue you want addressing. Want to see if it is the same answer across the board or whether or not it varies geographically or for any other reason.
Thanks for your help