I am due to see my MS nurse next week and am looking for some help on what to say.
Basically I was diagnosed rrms in Jan, made a good recovery from some really nasty relapses. Started on beta-inteferon and have been relapse free since.
However i find my walking is getting worse, now struggle to do 5 mins before my legs go jelly like and like lead weights. My tremor is getting progessivley worse, my sensory problems flare up all the time, I am in constant pain of one type or another and my concentration and memory are, well poor seems like an understatment…horrendous.
I take Gabbapentin 1800mg a day, have tried pregablin did nothing. I am not overweight, I do yoga twice a week, but even that’s becoming harder than it was just6 weeks ago.
I spoke to her about this about 3 weeks ago and she told me catagoricaly it was the heat - no exceptions. I know she is going to tell me it’s the heat again or an infection or basically fob me off…i geuinely feel things have changed…how do i bring this to her attention without being ‘corrected’ ?