My current situation is that I've had ME for 15 years, have just been given a vague diagnosis of Fibromyalgia and probable MS, but the neuro I'm seeing now doesn't want to do further investigation into the MS diagnosis despite my neurological symptoms and family history of MS as he feels I'm coping with the symptoms and that the treatment for fibromyalgia and MS is the same.
Whilst the medication etc is helping, I feel like I am struggling to cope with life in general.
I'm always exhausted so am struggling to cope with work, looking after the house, the horses etc
I'm struggling with physical tasks due to muscle weakness, altered sensation and balance, walking more than a couple of hundred yards and climbing stairs is really physically difficult and fatiguing.
My writing/typing is appalling as I have a tremor, I struggle with concentration and focusing on the screen due to blurred vision (I don't have ON) and am massively intolerant to noise.
My struggling with the clutch in my car too as my leg shakes when I use the clutch and I'm unable to keep the peddle down for any period of time.
We have an ocupational health nurse at work so I asume I could go and see her, what support etc is out there to make my life easier that I can actually have whilst I don't have a concrete diagnosis?
Any advice about what is available and how I can access it whilst in my current situation would be really helpful.