Feeling lost and confused

New diagnosis and before diagnosis
1

Hi, Just joined,

I have been feeling unwell for some years now, started over 3 years ago and still know no more than i did then.

It started will waking up not being able to feel my legs or even move them as they felt like lead weights, Since then i have been to the doctors 100s of times always coming away feeling like i am just a pain to him. I have had a MRI scan which was clear, i have had physiotherapy, injections in the spine, pain killers but nothing seens to be helping. You could say i have all of the symptoms of MS and have even told my doctor that i was worried that is what i thought it might be. He said it could be Fybromyalgia but after ready lots of information im not sure that is what it is. I had to stop working for sometime but am now working again part time for a company that understands and are great, I struggle to do day to day but make myself keep going as i beleive keeping going is keeping me sane, Sadly things are getting on top of me and dont know if im coming or going. Is there a test i can insest on having to either rule MS out or at least bring me closer to knowing whats going on

Thank you, if only for listening to me rant on

Thanks Helen

2

Hi Helen Sorry you’re having such a rubbish time. You said you’ve had a clear MRI - was this ordered by your GP or have you seen a neurologist? From what I’ve learned from here MS is a clinical diagnosis that is supported by a range of tests including MRIs, lumbar puncture, evoked potentials, etc. If you’ve not already, I’d say your best bet is to push for a referral to neurology. I am new to this though so prepared to bow down to a greater wisdom! Hope you get some answers x

3

Hi,

Yes, sorry you’re having such an awful time. I know very little, but what Sunflower says sounds right. Just wanted to send good vibes so you know you’re not on your own,

Good luck with it,

x