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getting a diagnosis and gp to help through the process???

Hi folks - hope you are all ok, and I am new to this so a big hi to everyone…I am on another forum but this is for an existing medical condition very very similiar to MS…ANYWAYS…

To cut a long story short, can anyone tell me how long did they get a formal diagnosis, how did you get the diagnosis, did you know you had MS, and did your gp/specialist take you seriously?? Also, did you have an ickling that it was MS, did you suggest this condition to your GP/specialist during the diagnostic proceedures?

Did you get diagnosed with another or similiar condition before the MS, later realizing it was actually MS, and did you kind of knew that there was someone going off deep down but ignored by GP/specialists?

What was the symptons that you first had when you started, and do you get taken seriously by your GP to get a formal diagnosis?

Sorry for so many questions folks…I was diagnosed with asperger syndrome with anxiety issues a few years, which I had since a child…even though it caused some minor issues for me having mild autism, like most people I got on with it as one does…I suffered from scoliosis and schumans disease when a kid and teenager, so kind of used to pain from a wee child - it wasn’t easy, but tried to lead a normal life as one can do…

Then several years ago, I became very poorly - even though I have always had some kind of health issue, I was relatively healthy and got on with things…but in around 2006, I couldn’t work and I had to stop university…

I noticed that I was having extreme mood and cognitive issues, like major depression, severe anxiety attacks, restless legs, severe widespread, fingers and toes turning number or a different colour, weight gain, irritable bowels, feeling that I need to urinate often, muscle twitching, feel flu like, feeling apathetic and no motivation to do anything, electric schock like feelings in legs and arms, floaters in eyes…recently, I have been getting itchy skin, a very mild red rash on my face cheeks, tics/increased muscle twitchings, loosing my balance on my feet. I have been having infrequent hallucinations again. My periods are painfuls and sometimes heavy. I cannot tolerate extreme temperatures, especially hot summer days: they make me feel fainty and generally poorly. I feel absolutely tired all time and unrefreshed. My sleep is erratic, and sometimes I struggle to concentrate and I notice that occasionally when I talk I can stutter or I notice that I found it hard to pronounce my words: I feel that I have to push my words and thoughts out, and my thinking is slowing down…my body feels stiff and weak, like I am weighed down by a heavy tonne of weight…my walking is ok but I cannot walk very fast, and sometimes my foot can turn in itself and I have nearly fallen over as I my foot will drag or not coordinate well. Sometimes, I cannot see clearly as my vision is slightly blurred, and my eyes occassionally feel gritty.

I have found out that I have low vitamin d, and in the past, the doctors thought I have got fibromyalgia, but the GP’s didn’t perform any tests to rule out any underlying conditions. I appreciate that conditions like fibromyalgia, anxiety, and even vitamin D can cause problems, but I have heard that alot of medical symptons like mine maybe sometimes similiar to underlying problems…

Like most people, I don’t want to be ill nor do I wish for anyone to be disabled, but I know my own body and I feel that something is not right…and I want anwers…been to a rheaumatologist, but she says that she doesn’t think it a rheaumatology issue, but to go back to my gp again…so I have been left in limbo again…I appreciate fibromyalgia is a terrible condition, but I think some gp’s throw it at patients when they cannot be bothered to look into people’s underlying problems…

Going to the gp on Friday, but like advise on what I could do next, and how do I go about asking him if I could get a referral for a neurologist or MRI scan in order to rule out multiple sceloris…???

Any ideas folks…I don’t want to feel like I am worrying or being a nightmare, but I want answers, as I don’t feel that doctors are sorting things out…by the way, had blood tests, most of them come back normal…apparently, my ANA blood results a few years ago was slightly raised, but the rheaumatology said that sometimes the ANA blood test can be slightly raised in most people, but my gp practice are telling me that my ana blood test was normal - so even this is confusing me…

Any tips would be great folks…

Thanxs :slight_smile: