Hi, my husband has ppms and is currently in hospital following sepsis. The sepsis infection has gone but he has been left with gastroparesis - paralysis of the bowels, whch the doctors are saying is due to his MS. Because of the pain this is causing he is struggling to do any physio and after 2 weeks bed-bound has only managed to stand twice. Does anyone out there have any experience of this and if so any suggestions that may help. The hospital are filling him with laxatives, and, as enemas aren’t working they are going to try peristeen irrigation.
Hi Nutmeg
I am so sorry I don’t know anything about that, so can’t advise, but hopefully someone else may have information to help.
I feel so sorry for your husband, but also for you, as its obviously a worry, only thing I can think of, is to have a word with hubby’s ms nurse if he has one.
Wishing you both all the best.
Pam x
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Thanks Pam, the ms nurse has come up with a lovely method of torture for him. They are going to try Persisted irrigation which wouldn’t be so bad if he was mobile, but to get him on a commode is going to be a nightmare. They also want him to go to rehab which terrifies him after he was there 2 months last year. Things are a bit tough at the moment. X
Hi Nutmeg,
Sorry to hear about your husband’s plight. Bladder and bowel issues can be our biggest problems. Not a good mix when we have trouble getting to a loo anyway.
l am sure the ‘peristeen’ method will help - and probably when best initiated at a re-hab place. But still not an easy thing for you both at home.
l have a SPC for my useless bladder - which makes my life easier. But for bowels - l am really considering having some sort of colostomy - l have no warning with my bowels - which keeps me a prisoner to the loo. Looking ahead, l can see that being a ‘double bag lady’ would give me more independence. Would not need to be helped on and off a loo. Better for my self-esteem as well.
Having met someone who has a colostomy - and you would never know - [and she said she could not detect that l had a SPC ]- l was encouraged to look at doing the same.
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Thanks Spacejacket. The drs now think the problem might be higher up having given half the ward food poisoning and it not producing anything other than water- silver linings and all, so we’ll see what they find. Unfortunately it was having an SPC that gave him the infection this time, don’t know how any other ops would go.