My bowel.doesnt work…peristeen not helped…discussed colostomy or illeostomy today…been given med resolor to try but thats last thing now …i dont want a bag but what can i do nothing has ever worked for me…anyone the same
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Hi anon, Yes, I had similar problems, peristeen also no help. After a great deal of thought I decided to try LDN, it has been an enormous success for both my bowel and bladder problems. It seems to help different people in different ways, it may not help you in the same way but perhaps before you consider such a drastic move it would be worth trying. You can find out how to obtain it if you go to the LDN Trust website. Hope this helps, best wishes, Nina
Hi,
I have a similar problem, I’ve been using various anal irrigation systems over the last few years, before that suppositories, I have just gone 14 days without anything working, the last 7 days of this I was in hospital taking a lot of laxatives, had unsuccessful enemas, it started clearing on day 14. Now it’s been nearly 5 days since I came home and despite being on a lot of extra laxative meds, my bowels are not working again.
Has anyone got a solution to this problem, I do not mind a colostomy bag as I’m doing anal irrigation 5 times a week for several years and I would like something that works and is easy to administer.
Hi there,
I’m new here, but I do read what’s on the forum regularly. I’ve had PPMS for 10 years and am wheelchair bound. Last year I had a colostomy and I have to say it’s been one of the best things I’ve had done. It really does make life so much easier. My carers change the bag every morning and that’s it until the next morning, no problem at all.
i hope that helps but please ask for any extra help
Jane10
Hi Jane
Just wanted to say welcome to the forum, hope to see you here again.
Pam x
Hey everyone,
Was hoping there would be something helpful in these posts for my bowel issues. Constipation used to be an issue, but now it’s reversed the other way☹️ Without giving more info then you want, my problem is bowel urgency now. Some days things get really ugly with repeated bouts of diarrhea . It comes on with very little warning too. A small rumble, and off to the bathroom. It’s always on mind when I’m away from home. I haven’t come to terms with a colonostomy yet.
Hi I’ve just written about that very subject in my blog, if you get a moment take a look. All the best Deborah
Thanks Deborah! I’ll be sure to check it out!
After trying each prescribed ‘cure’, self irrigation et al, I decided to see a Colonic Irrigation specialist. She is experienced and knowledgeable. The first attempt wasn’t really productive but helped a little. The 2nd attempt led to the therapist discovering an impacted bowel. After gentle tummy & lower back massage there was little movement.
She gave me herbal tea and herbal tablets to take after main meals. Within a fortnight, the impaction cleared & I felt good. The following week, I had severe and very painful skin excoriation. GP gave me ointments & creams.
My not so pert bottom has healed so no more rashes & I see the therapist every month at a reduced rate.
Thanks Jane10 for your reassurance about the Colostomy xx
This thread was started in Nov 2013.
Judging by the number of posts. It shows, how with time. Not much changes.
Seems most people I meet these days, have PPMS. Very strange that. I wish I only had hay fever.
I’m really starting to dislike PPMS. From being unable to run to human waste issues.
I’ll stick to the changing diet & exercise routine.
Stay healthy folks!
Terry
I didnt realize this post began a few years ago.
But bowel problems are a very common feature in MS and in whatever it is I`ve got!
I`m taking movicol daily and coping fairly well. But I cant distinguish between wind and a bowel movement.
Getting onto my commode with hoisting, takes me about 30 minutes for each loo visit.
It`s knackering!
pollsx
Hi
I’m in the ‘bowels and bladder don’t work’ club. I had an SPC in March and am now waiting for a date to have a colostomy. Essentially, the nerves that control the sphincters in both bowel and bladder don’t work, so I can’t empty. I used ISC for about 5 years but found that my urethra was becoming sensitised so I had the feeling of wanting to go all the time. So had the SPC.
I’ve also been doing digital rectal stimulation for about 6 years. And have still been plagued with constipation, piles and most recently a prolapse. I’ve tried absolutely everything from suppositories, mini enemas and Peristeen; used castor oil, Movicol and laxatives. So now I’m biting the bullet and having the full outside plumbing.
Just got the OK from the anaesthetist (they need to check that someone with very little mobility will be able to withstand the anaesthetic and be able to breathe without a ventilator afterwards!) so it’s all go now for the colostomy operation some time over the next couple of months.
It’s really helpful to know that other people have found it improves their lives. I think it will mine.
I’m not PPMS but SPMS. I hope no one minds my butting into your forum.
Sue
I`m glad you found this thread helpful Sue.
I like the PPMSers, having been one mesen!
pollsx
Hi everyone,
I’ve had external plumbing for three years now, SPC done in 2014 and my colostomy was done in 2015. I was starting to get distressed when I couldn’t get to the toilet in time, being wheelchair-bound and living on my own, and I just couldn’t help but mess myself. So I had to wait for the carers to come and clean me up but what was more distressing was that my faeces we’re actually travelling up inside my lady passage, that used to really upset me. My consultant recommended I have the colostomy done and he said it would change my life and honestly it has. I don’t worry about going out any more and it’s just a whole load off my mind.
So I would thoroughly recommend external plumbing 
X
Oh Ssssuuu… everyone “butts in” with bowel probs
I found the info about the colostomy bag informative and reassuring too.
Chrissie xx
hi every 1 my first time here doing blogs im glad i found this site was looking for information about colostomy or ileostomy which i will be finding out soon. and by reading your blogs has put my mind at rest i will let you know which one i have see you for know.
Hi Nivek
Welcome to the forum, lots of lovely people here, always willing to listen and offer advice when they can.
When you are ready you can always start a new post, if you go to the top of the page, you just click on ‘new thread’ and type away, someone usually is around to reply.
Look forward to seeing you here in the future.
Pam x
I have intermittent bowel movements associated with my PPMS. I use Ortis Fruit & Fibres ( Rhubarb, Figs, Tamarind), which are like Oxo cubes - chew one with water, at bed time, and the next day I caca for England. I probably use them once a week. I always have prescribed suppositories on standby - probably once a month I might need one. They take only 20 minutes to work. Regards Steve
hi jane 10 you was saying you had he spc. i have had it done 2/12/17 but im finding that it can ach in the crutch and urethra area did you have any symptoms if so does it go away. im also waiting for the colostomy which i cant wait just hope no hidden side affects
with thanks kevin