Further info.

New diagnosis and before diagnosis
1

Hi everyone,

ive just been to see my gp after being told last week everything was all in my head and I was mentally unstable. He’s being extremely supportive and said that this wasn’t all in my head. He printed out some info on my CSF investigation can anyone make any sense of this. Here goes:

albumin. 48. 35-50(g/l)

IgG (csf). 0.028 (g/l)

IgG. 8.82 6.0-16.0(g/l)

oligoclonal bands detected

igG ratio 0.17

IgG index 0.95

my lumbar puncture results stated that oligoclonal bands were present and IgG index was significantly elevated mri was unremarkable any help explaining this would be so greatly appreciated

thanks

Danielle

2

doctor geoff is pretty clued up so hopefully he’ll see this.

1 Like
3

I hope so Carole, my gp has been an excellent support but he’s held his hands up and said it’s to specialist for him to even make sense of it.

4

Hi Danielle

It’s something that is impossible for most of us to even comment on. The trouble is that as far as MS is concerned, if you have no lesions showing up on MRI, you can’t be diagnosed with MS.

The LP results may need further explanation from a neurologist, but even when O bands are discovered in the CSF, MS can only be diagnosed because of the presence of lesions in the brain and/or spine.

So, is there anyway your GP can refer you to someone more empathetic who can read the LP results and help you to get a bit more explanation?

It’s absolutely clear that it’s not all in your head. So it seems that you desperately need a specialist to work out exactly what’s wrong and explain it to you.

Sue

5

Thanks for the reply Sue, I’ve made a complaint to the neuroscience manager about the way the latest neurologist refused to explain it. She’s just emailed me to ask me to call her in the morning.

My gp thought I was joking when I told him the neuro said it was all in my head. This is all so frustrating.

6

Thanks for the reply Sue, I’ve made a complaint to the neuroscience manager about the way the latest neurologist refused to explain it. She’s just emailed me to ask me to call her in the morning.

My gp thought I was joking when I told him the neuro said it was all in my head. This is all so frustrating.

7

Well I’m glad you have a phone call arranged. I truly hope she can explain things for you, or can arrange for someone to review your case and see you again. And soon.

Sue

8

Thanks sue I’d be lost without everyone on this forum giving me help and support.